RT Journal Article
SR Electronic
T1 Uptake and use of a minimum data set (MDS) for older people living and dying in care homes in England: a realist review protocol
JF BMJ Open
JO BMJ Open
FD British Medical Journal Publishing Group
SP e040397
DO 10.1136/bmjopen-2020-040397
VO 10
IS 11
A1 Massirfufulay Kpehe Musa
A1 Gizdem Akdur
A1 Barbara Hanratty
A1 Sarah Kelly
A1 Adam Gordon
A1 Guy Peryer
A1 Karen Spilsbury
A1 Anne Killett
A1 Jennifer Burton
A1 Julienne Meyer
A1 Sue Fortescue
A1 Ann-Marie Towers
A1 Lisa Irvine
A1 Claire Goodman
YR 2020
UL http://bmjopen.bmj.com/content/10/11/e040397.abstract
AB Introduction Care homes provide nursing and social care for older people who can no longer live independently at home. In the UK, there is no consistent approach to how information about residents’ medical history, care needs and preferences are collected and shared. This limits opportunities to understand the care home population, have a systematic approach to assessment and documentation of care, identifiy care home residents at risk of deterioration and review care. Countries with standardised approaches to residents’ assessment, care planning and review (eg, minimum data sets (MDS)) use the data to understand the care home population, guide resource allocation, monitor services delivery and for research. The aim of this realist review is to develop a theory-driven understanding of how care home staff implement and use MDS to plan and deliver care of individual residents.Methods and analysis A realist review will be conducted in three research stages.Stage 1 will scope the literature and develop candidate programme theories of what ensures effective uptake and sustained implementation of an MDS.Stage2 will test and refine these theories through further iterative searches of the evidence from the literature to establish how effective uptake of an MDS can be achieved.Stage 3 will consult with relevant stakeholders to test or refine the programme theory (theories) of how an MDS works at the resident level of care for different stakeholders and in what circumstances. Data synthesis will use realist logic to align data from each eligible article with possible context–mechanism–outcome configurations or specific elements that answer the research questions.Ethics and dissemination The University of Hertfordshire Ethics Committee has approved this study (HSK/SF/UH/04169). Findings will be disseminated through briefings with stakeholders, conference presentations, a national consultation on the use of an MDS in UK long-term care settings, publications in peer-reviewed journals and in print and social media publications accessible to residents, relatives and care home staff.PROSPERO registration number CRD42020171323; this review protocol is registered on the International Prospective Register of Systematic Reviews.