PT  - JOURNAL ARTICLE
AU  - Emily Duncanson
AU  - Paul N Bennett
AU  - Andrea Viecelli
AU  - Kathryn Dansie
AU  - William Handke
AU  - Allison Tong
AU  - Suetonia Palmer
AU  - Shilpanjali Jesudason
AU  - Stephen P McDonald
AU  - Rachael L Morton
ED  - ,
TI  - Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring WIth Feedback Trial (SWIFT) pilot: protocol for a qualitative study in Australia
AID  - 10.1136/bmjopen-2020-039014
DP  - 2020 Nov 01
TA  - BMJ Open
PG  - e039014
VI  - 10
IP  - 11
4099  - http://bmjopen.bmj.com/content/10/11/e039014.short
4100  - http://bmjopen.bmj.com/content/10/11/e039014.full
SO  - BMJ Open2020 Nov 01; 10
AB  - Introduction People receiving haemodialysis experience a high symptom burden and impaired quality of life. The use of patient-reported outcome measures (PROMs) is increasing in nephrology care, however their acceptability, utility and impacts are not well understood.Methods and analysis We describe a protocol for a qualitative study to evaluate the feasibility and acceptability of electronic-PROMs (e-PROMs) data capture and feedback in haemodialysis following the pilot Symptom monitoring WIth Feedback Trial (SWIFT). SWIFT involves linkage of e-PROMs data, including symptoms and health-related quality of life, to the Australia and New Zealand Dialysis and Transplant Registry with feedback to patients’ treating nephrologists and nurse unit managers. Focus groups and semistructured interviews will be conducted with nephrologists (n=15), dialysis nurses (n=24) and patients receiving haemodialysis (n=24) from six dialysis units in Australia. Question topics will include the technical and clinical feasibility and acceptability of e-PROMs reporting and feedback (including the barriers and enablers to uptake) and perceived impact on patient care and outcomes. Transcripts will be analysed thematically and guided by Normalisation Process Theory.Ethics and dissemination Ethics approval was obtained from the relevant hospital Human Research Ethics Committees (HREC/18/CALHN/481; HREC/MML/54599). The findings from the SWIFT pilot and qualitative evaluation will inform the implementation of the SWIFT main trial, and more broadly, the use of e-PROMs in clinical settings and registries.Trial registration number ANZCTRN12618001976279.