RT Journal Article
SR Electronic
T1 Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA
JF BMJ Open
JO BMJ Open
FD British Medical Journal Publishing Group
SP e037016
DO 10.1136/bmjopen-2020-037016
VO 10
IS 9
A1 Liz Salmi
A1 Selina Brudnicki
A1 Maho Isono
A1 Sara Riggare
A1 Cecilia Rodriquez
A1 Louise K Schaper
A1 Jan Walker
A1 Tom Delbanco
YR 2020
UL http://bmjopen.bmj.com/content/10/9/e037016.abstract
AB In the absence of international standards, widely differing attitudes and laws, medical and social cultures strongly influence whether and how patients may access their medical records in various settings of care. Reviewing records, including the notes clinicians write, can help shape how people participate in their own care. Aided at times by new technologies, individual patients and care partners are repurposing existing tools and designing innovative, often ‘low-tech’ ways to collect, sort and interpret their own health information. To illustrate diverse approaches that individuals may take, six individuals from six nations offer anecdotes demonstrating how they are learning to collect, assess and benefit from their personal health information.