PT  - JOURNAL ARTICLE
AU  - Maria-Jose Santana
AU  - Sandra Zelinsky
AU  - Sadia Ahmed
AU  - Chelsea Doktorchik
AU  - Matthew James
AU  - Stephen Wilton
AU  - Hude Quan
AU  - Nicolas Fernandez
AU  - Todd Anderson
AU  - Sonia Butalia
TI  - Patients, clinicians and researchers working together to improve cardiovascular health: a qualitative study of barriers and priorities for patient-oriented research
AID  - 10.1136/bmjopen-2019-031187
DP  - 2020 Feb 01
TA  - BMJ Open
PG  - e031187
VI  - 10
IP  - 2
4099  - http://bmjopen.bmj.com/content/10/2/e031187.short
4100  - http://bmjopen.bmj.com/content/10/2/e031187.full
SO  - BMJ Open2020 Feb 01; 10
AB  - Objectives The overall goal of this study is to identify priorities for cardiovascular (CV) health research that are important to patients and clinician-researchers. We brought together a group of CV patients and clinician-researchers new to patient-oriented research (POR), to build a multidisciplinary POR team and form an advisory committee for the Libin Cardiovascular Institute of Alberta.Design This qualitative POR used a participatory health research paradigm to work with participants in eliciting their priorities. Therefore, participants were involved in priority setting, and analysis of findings. Participants also developed a plan for continued engagement to support POR in CV health research.Setting Libin Cardiovascular Institute of Alberta, Cumming School of Medicine, University of Calgary, Canada.Participants A total of 23 participants, including patients and family caregivers (n=12) and clinician-researchers (n=11).Results Participants identified barriers and facilitators to POR in CV health (lack of awareness of POR and poor understanding on the role of patients) and 10 research priorities for improving CV health. The CV health research priorities include: (1) CV disease prediction and prevention, (2) access to CV care, (3) communication with providers, (4) use of eHealth technology, (5) patient experiences in healthcare, (6) patient engagement, (7) transitions and continuity of CV care, (8) integrated CV care, (9) development of structures for patient-to-patient support and (10) research on rare heart diseases.Conclusions In this study, research priorities were identified by patients and clinician-researchers working together to improve CV health. Future research programme and projects will be developed to address these priorities. A key output of this study is the creation of the patient advisory council that will provide support and will work with clinician-researchers to improve CV health.