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Building patient capacity to participate in care during hospitalisation: a scoping review
  1. Donna Goodridge1,
  2. Meghan McDonald2,
  3. Lucia New2,
  4. Murray Scharf3,
  5. Elizabeth Harrison4,
  6. Thomas Rotter5,
  7. Erin Watson6,
  8. Chrysanthus Henry7,
  9. Erika D Penz8
  1. 1 Department of Medicine, College of Medicine, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
  2. 2 School of Nursing, Saskatchewan Polytechnic, Saskatoon, Saskatchewan, Canada
  3. 3 College of Education, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
  4. 4 School of Rehabilitation Science, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
  5. 5 Healthcare Quality Programs, Queen’s University, Kingston, Ontario, Canada
  6. 6 Leslie and Irene Dube Health Sciences Library, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
  7. 7 Department of Community Health and Epidemiology, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
  8. 8 Medicine, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
  1. Correspondence to Dr Donna Goodridge; donna.goodridge{at}usask.ca

Abstract

Objectives To map the existing literature and describe interventions aimed at building the capacity of patients to participate in care during hospitalisation by: (1) describing and categorising the aspects of care targeted by these interventions and (2) identifying the behaviour change techniques (BCTs) used in these interventions. A patient representative participated in all aspects of this project.

Design Scoping review.

Data sources MEDLINE, Embase and CINAHL (Inception −2017).

Study selection Studies reporting primary research studies on building the capacity of hospitalised adult patients to participate in care which described or included one or more structured or systematic interventions and described the outcomes for at least the key stakeholder group were included.

Data extraction Title and abstract screening and full text screening were conducted by pairs of trained reviewers. One reviewer extracted data, which were verified by a second reviewer. Interventions were classified according to seven aspects of care relevant to hospital settings. BCTs identified in the articles were assigned through consensus of three reviewers.

Results Database searches yielded a total 9899 articles, resulting in 87 articles that met the inclusion criteria. Interventions directed at building patient capacity to participate in care while hospitalised were categorised as those related to improving: patient safety (20.9%); care coordination (5.7%); effective treatment (5.7%) and/or patient-centred care using: bedside nursing handovers (5.7%); communication (29.1%); care planning (14%) or the care environment (19.8%). The majority of studies reported one or more positive outcomes from the defined intervention. Adding new elements (objects) to the environment and restructuring the social and/or physical environment were the most frequently identified BCTs.

Conclusions The majority of studies to build capacity for participation in care report one or more positive outcomes, although a more comprehensive analysis is warranted.

  • patient participation
  • patient-centred care
  • behavior change techniques
  • hospitals
  • quality improvement

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

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Footnotes

  • Contributors DG, EH, MS and TR conceptualised the study. EW conducted the literature search. DG coordinated the project and is the guarantor. MM, LN, MS, EH, TR, CH, EDP and DG screened the studies and contributed to the interpretation of findings. DG, MM and LN extracted the data. DG drafted and all authors critically reviewed and approved the revised manuscript.

  • Funding This work was supported by a Targeted Collaborated Innovation Grant #3894 from the Saskatchewan Health Research Foundation.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement All publications cited in this journal are publicly available.

  • Patient consent for publication Not required.

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