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Health services research
Protocol
Registry of Older South Australians (ROSA): framework and plan
  1. Maria C Inacio1,2,
  2. Sarah Catherine Elizabeth Bray1,2,3,
  3. Craig Whitehead4,5,
  4. Megan Corlis6,
  5. Renuka Visvanathan7,8,
  6. Keith Evans9,
  7. Elizabeth C Griffith10,
  8. Steve L Wesselingh10
  1. 1 Registry of Older South Australians, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia
  2. 2 Division of Health Sciences, University of South Australia, Adelaide, South Australia, Australia
  3. 3 Discipline of Medicine, University of Adelaide, Adelaide, South Australia, Australia
  4. 4 Rehabilitation, Aged and Extended Care, Flinders University, Adelaide, South Australia, Australia
  5. 5 Division of Rehabilitation, Aged Care and Palliative Care, Southern Adelaide Local Health Network, Bedford Park, South Australia, Australia
  6. 6 Helping Hand Aged Care, North Adelaide, South Australia, Australia
  7. 7 National Health and Medical Research Council Centre of Research Excellence in Frailty and Healthy Ageing, University of Adelaide, Adelaide, South Australia, Australia
  8. 8 Aged and Extended Care Services, Central Adelaide Local Health Network, The Queen Elizabeth Hospital, Woodville, South Australia, Australia
  9. 9 Silver Chain Group, Keswick, South Australia, Australia
  10. 10 South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia
  1. Correspondence to Dr. Sarah Catherine Elizabeth Bray; Sarah.Bray{at}sahmri.com

Abstract

Introduction Australia’s ageing population puts significant demands on the aged care and healthcare sectors. To monitor the provision of aged care and healthcare services to older people, each government body has an individual data collection system. Together these systems can be the basis for creating the evidence necessary to support future allocation of resources for our ageing community. The Registry of Older South Australians (ROSA) is a cross-sector multidisciplinary (ie, aged care and healthcare) platform built to address the challenges of monitoring people in aged care settings. This protocol describes the ROSA’s framework and plans.

Methods and analysis A registry to capture 16 000 South Australians/year undergoing an aged care eligibility assessment was designed. ROSA will contain information captured by the Commonwealth and South Australian state Health Authority, linked by two data integrating authorities, and housed on a secured data platform. ROSA will contain information on the sociodemographic, health, function, psychological, social, home and safety assessment and concerns characteristics, aged care services, general health services, and mortality of people receiving aged care services. Registered participants will be prospectively monitored until their death and yearly updates of their aged care and healthcare services information will be added to the registry.

Ethics and dissemination ROSA will longitudinally monitor the services provided to a population that puts costly demands on the state healthcare and aged care systems, identify unwanted variation, and underpin future research. ROSA’s expected outputs include an annual report, a research agenda that focuses on high burden conditions and potentially economically impactful questions, educational materials, and risk profiling tools. ROSA was approved by the South Australian Department for Health and Ageing HREC (HREC/17/SAH/125) and the Australian Institute of Health and Welfare HREC (EO2018/2/429).

  • registry
  • healthy ageing
  • aged care
  • health economics
  • population health

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

https://doi.org/10.1136/bmjopen-2018-026319

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    Footnotes

    • Contributors The following authors made substantial contributions to conception and design: MCI, SCEB, CW, MC, RV, KE, ECG and SLW. Acquisition of data: MCI, SCEB, CW, ECG and SLW. Analysis and interpretation of data: MCI, SCEB, CW, MC, RV, KE, ECG and SLW. The manuscript was drafted by MCI and it was critically revised with input from SCEB, CW, MC, RV, KE, ECG and SLW.

    • Funding We acknowledge the South Australian Government who provide us with support through the Premier’s Research and Industry Fund and the Department for Industry and Skills (2017–2021) to conduct this work.

    • Competing interests RV is on the board of Resthaven. KE represents an organisation (Silver Chain) that provides a Regional Assessment Service in South Australia and cares for individuals who have been ACAT Assessed. The remaining authors declare that they have no competing interests.

    • Provenance and peer review Not commissioned; externally peer reviewed.

    • Patient consent for publication Not required.