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Realist evaluation of cancer rehabilitation services in South Wales (REEACaRS): a mixed methods study protocol
  1. Judit Katalin Csontos1,
  2. Deborah Fitzsimmons2,
  3. Mari Jones2,
  4. Wendy M Wilkinson3,
  5. Joanne Horton4,
  6. Lisa Love-Gould5,
  7. Anna Tee6,
  8. Tessa Watts1
  1. 1Cardiff University, Cardiff, UK
  2. 2Swansea University, Swansea, UK
  3. 3Wales Cancer Network, Swansea, UK
  4. 4Abertawe Bro Morgannwg University Health Board, Port Talbot, UK
  5. 5Velindre University NHS Trust, Cardiff, UK
  6. 6Macmillan Cancer Support, Bridgend, UK
  1. Correspondence to Judit Katalin Csontos; CsontosJK{at}cardiff.ac.uk

Abstract

Introduction Long-term and late effects of cancer treatments can cause functional limitations and reduce quality of life. Cancer rehabilitation services, which can comprise physical exercise, psychological support and educational interventions depending on the individual’s needs, have been found to have a positive effect on health-related quality of life worldwide. However, accessibility or the lack of awareness on available help can act as barriers and influence the uptake of services, resulting in people having unmet rehabilitation needs. In Wales, UK, 41% of people, who have had health and social care needs resulting from cancer and its treatments, reported that they did not receive care when needed. The reason for this lack of support has not yet been fully investigated. The aim of this study is to investigate the conditions in which cancer rehabilitation services work and their underpinning mechanisms in South Wales, UK, specifically addressing barriers, facilitators and costs.

Methods and analysis Realist evaluation, which explains for whom a service works in what circumstances and how through context-mechanism-outcome pattern conjunctions, will be used in three phases to investigate the conditions in which cancer rehabilitation services work and their underpinning mechanisms. Phase 1 will be secondary analysis of a cancer rehabilitation database from a local Health Board to give context to who are accessing rehabilitation. Phase 2 will be thematic analysis of face-to-face, semistructured rehabilitation participant (n=20) and healthcare professional (n=20) interviews to explore the mechanisms of how cancer rehabilitation works. Phase 3 will be two case studies and cost-consequences analysis of cancer rehabilitation services.

Ethics and dissemination This study received favourable ethical opinion from London South-East Research Ethics Committee (17/LO/2123) in December 2017. This project is part of the author’s PhD thesis and it is expected that the findings will be disseminated in academic journals and at local and international conferences.

  • rehabilitation medicine
  • oncology
  • qualitative research
  • realist evaluation
  • organisation of health services
  • allied health professionals

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

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Footnotes

  • Contributors This study was proposed by JKC, TW and DF. JKC drafted the study protocol with the supervision of TW, DF and MJ. TW and DF provided significant help with the editing. WMW, JH, LLG and AT are members of the Steering group and have made important contribution to the design of the study, data collection and the editing of the study protocol. All authors read and approved the final version of this article.

  • Funding This work was supported by Macmillan Cancer Support, Swansea University (No RS16/1700X) and the John and Alice Edwards Studentship Fund at Cardiff University.

  • Competing interests This study will be carried out as part of JKC’s PhD candidature and will contribute to the doctoral thesis.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Patient consent for publication Not required.

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