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Public health
Research
Sharing individual participant data from clinical studies: a cross-sectional online survey among Italian patient and citizen groups

Authors

  • Cinzia Colombo Department of Public Health, Laboratory for Medical Research and Consumer Involvement, Istituto di Ricerche Farmacologiche Mario Negri IRCCS, Milan, Italy PubMed articlesGoogle scholar articles
  • Anna Roberto Department of Public Health, Laboratory for Medical Research and Consumer Involvement, Istituto di Ricerche Farmacologiche Mario Negri IRCCS, Milan, Italy PubMed articlesGoogle scholar articles
  • Karmela Krleza-Jeric IMPACT Observatory, Visiting Scientist MedILS (Mediterranean Institute for Life Sciences), Split, Croatia Cochrane Croatia, Split, Croatia Electronic Health Information Laboratory, CHEO Research Institute, Ottawa, Ontario, Canada PubMed articlesGoogle scholar articles
  • Elena Parmelli Department of Epidemiology, Lazio Regional Health Service - ASL Roma 1, Rome, Italy PubMed articlesGoogle scholar articles
  • Rita Banzi Center for Regulatory Policies, Istituto di Ricerche Farmacologiche Mario Negri IRCCS, Milan, Italy PubMed articlesGoogle scholar articles
  1. Correspondence to Dr Cinzia Colombo; cinzia.colombo{at}marionegri.it
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Citation

Colombo C, Roberto A, Krleza-Jeric K, et al
Sharing individual participant data from clinical studies: a cross-sectional online survey among Italian patient and citizen groups
BMJ Open 2019;9:e024863. doi: 10.1136/bmjopen-2018-024863

Publication history

  • Received June 21, 2018
  • Revised November 22, 2018
  • Accepted November 28, 2018
  • First published February 5, 2019.
Online issue publication 
February 05, 2019
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© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.