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Engaging patients and family members in the evaluation of a mental health patient portal: protocol for a mixed-methods study
  1. Gillian Strudwick1,
  2. Craig Kuziemsky2,
  3. Richard G Booth3,
  4. Sarah Collins4,
  5. Anna Chyjek1,
  6. Moshe Sakal5,
  7. Alexandra Harris6,
  8. John Strauss1
  1. 1 Centre for Addiction and Mental Health, Toronto, Ontario, Canada
  2. 2 Telfer School of Management, University of Ottawa, Ottawa, Canada
  3. 3 Arthur Labatt Family School of Nursing, Western University, London, Ontario, Canada
  4. 4 Department of Biomedical Informatics and Nursing, Columbia University, New York, USA
  5. 5 Hong Fook Mental Health Association, Toronto, Ontario, Canada
  6. 6 Trillium Health Partners, Mississauga, Ontario, Canada
  1. Correspondence to Dr Gillian Strudwick; gillian.strudwick{at}camh.ca

Abstract

Introduction Twenty per cent of Canadians will experience a mental illness in any year. Mental health patient portals have been developed to support these individuals in taking more control over their own mental health and care. This may be done through electronic access to their health records and other supportive functions like completion of online self-assessments. To date, there has been limited research into the value that these portals may provide within mental health contexts. This study will identify what value mental health patient portals may offer to patients and their family members.

Methods and analysis This study will use a mixed-methods design. Patients will complete a survey consisting of validated instruments at the time of enrolment in the portal, and at 3 and 6 months of portal use. Patient and family member focus groups will be conducted. Portal usage data will be collected to identify if there are differences in outcomes based on usage. The study will be done at Canada’s largest mental health and addiction teaching hospital, and will be conducted using a patient and family-oriented research approach, engaging these important representatives in all stages of the research process. The primary data analysis for the survey portion of the study will be done using linear mixed-effect models, assessing the differences between patients with different portal usage levels. A thematic analysis will be conducted of the focus group transcripts.

Ethics and dissemination Approval from the study site’s Research Ethics Board has been obtained. The dissemination of findings of this study will be done through presentations at conferences, as well as a formal peer-reviewed journal article. Additionally, the research team will work with a group of patients and family members to identify opportunities to complete knowledge translation and dissemination activities in non-traditional venues.

  • patient portal
  • mental health
  • patient engagement
  • family engagement
  • health informatics

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

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Footnotes

  • Contributors All authors were involved in the conceptualisation of this the study. GS and CK co-lead the writing of the original grant with substantive feedback from RB, SC, AC, JS, MS and AH. RB supported the development of the qualitative portion of this study. SC provided additional support in the organisation of the original grant. AH and MS sat on the patient and family advisory committee. GS wrote an initial draft of the protocol, and substantive feedback and revisions were completed by CK, RB, SC, AC, JS, MS and AH.

  • Funding This study was funded by the Canadian Institutes of Health Research, Patient Oriented Research Collaboration Grant (Competition #201711), and the Centre for Addiction and Mental Health.

  • Competing interests None declared.

  • Patient consent Not required.

  • Ethics approval Centre for Addiction and Mental Health Research Ethics Board.

  • Provenance and peer review Not commissioned; externally peer reviewed.