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Identifying priority policy issues and health system research questions associated with recovery outcomes for burns survivors in India: a qualitative inquiry
  1. Jagnoor Jagnoor1,2,
  2. Sheree Bekker3,
  3. Shobha Chamania4,
  4. Tom Potokar5,
  5. Rebecca Ivers2
  1. 1 The George Institute for Global Health, New Delhi, India
  2. 2 Injury Division, The George Institute for Global Health, University of New South Wales, Sydney, New South Wales, Australia
  3. 3 Faculty of Health, Federation University Australia, Ballarat, Victoria, Australia
  4. 4 Choithram Hospital and Research Centre, Indore, Madhya Pradesh, India
  5. 5 Centre for Global Burn Injury Policy & Research, Swansea University, Swansea, UK
  1. Correspondence to Dr Jagnoor Jagnoor; jjagnoor{at}george.org.au

Abstract

Objectives This study aimed to identify priority policy issues and health system research questions associated with recovery outcomes for burns survivors in India.

Design Qualitative inquiry; data were collected through semistructured in-depth interviews and focus group discussions.

Setting Nine sites in urban and rural settings across India, through primary, secondary and tertiary health facilities.

Participants Healthcare providers, key informants, burns survivors and/or their carers.

Results Participants acknowledged the challenges of burns care and recovery, and identified the need for prolonged rehabilitation. Challenges identified included poor communication between healthcare providers and survivors, limited rehabilitation services, difficulties with transportation to health facility and high cost associated with burns care. Burns survivors and healthcare providers identified the stigma attached with burns as the biggest challenge within the healthcare system, as well as in the community. Systems barriers (eg, limited infrastructure and human resources), lack of economic and social support, and poor understanding of recovery and rehabilitation were identified as major barriers to recovery.

Conclusions Though further research is needed for addressing gaps in data, strengthening of health systems can enable providers to address issues such as developing/providing, protocols, capacity building, effective coordination between key organisations and referral networks.

  • burns
  • injury
  • rehabilitation
  • India
  • health service

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

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Footnotes

  • Contributors JJ and RI conceived the study and its design. JJ led data collection and data analysis. SB contributed to data analysis. SC and TP contributed to study design and assisted with study site identification and the recruitment of participants. All authors were involved in the interpretation of findings and approve this final version of the manuscript. JJ and SB drafted the manuscript.

  • Funding This work was funded by WHO;Geneva reference number WCCPRD3608471 2015/572126.

  • Competing interests None declared.

  • Patient consent Obtained.

  • Ethics approval The University of Sydney Human Research Ethics Committee approved this study, with governance approvals as needed for sites.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement The data collected and analysed through the current study are available from the corresponding author on reasonable request.

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