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Barriers and facilitators to employment for young adults with mental illness: a scoping review
  1. Taryn Gmitroski1,2,
  2. Christl Bradley1,2,
  3. Lyn Heinemann3,
  4. Grace Liu4,5,
  5. Paige Blanchard4,5,
  6. Charlotte Beck6,
  7. Steve Mathias1,5,6,7,8,
  8. Adelena Leon1,2,
  9. Skye Pamela Barbic1,2,5,6,9
  1. 1 Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada
  2. 2 Department of Occupational Science and Occupational Therapy, UBC, Vancouver, British Columbia, Canada
  3. 3 Canadian Mental Health Association, Vancouver, British Columbia, Canada
  4. 4 Providence Health, Vancouver, British Columbia, Canada
  5. 5 Foundry, Vancouver, British Columbia, Canada
  6. 6 UBC Library, University of British Columbia, Vancouver, British Columbia, Canada
  7. 7 Centre for Health Evaluation and Outcome Sciences, Vancouver, British Columbia, Canada
  8. 8 Department of Psychiatry, University of British Columbia, Vancouver, British Columbia, Canada
  9. 9 Department of Psychiatry, St Paul’s Hospital, Vancouver, British Columbia, Canada
  1. Correspondence to Dr Skye Pamela Barbic; skye.barbic{at}ubc.ca

Abstract

Objectives The issue of gaining employment for those with mental illness is a growing global concern. For many in the young adult population, who are at a transitional age, employment is a central goal. In response, we conducted a scoping review to answer the question, ‘What are the barriers and facilitators to employment for young adults with mental illness?’

Design We conducted a scoping review in accordance to the Arksey and O’Malley framework. We performed a thorough search of Medline, EMBASE, CINAHL, ABI/INFORM, PsycINFO and Cochrane. We included studies that considered young adults aged 15–29 years of age with a mental health diagnosis, who were seeking employment or were included in an employment intervention.

Results Our search resulted in 24 research articles that focused on employment for young adults with mental illness. Four main themes were extracted from the literature: (1) integrated health and social services, (2) age-exposure to employment supports, (3) self-awareness and autonomy and (4) sustained support over the career trajectory.

Conclusions Our review suggests that consistent youth-centred employment interventions, in addition to usual mental health treatment, can facilitate young adults with mental illness to achieve their employment goals. Aligning the mental health and employment priorities of young adults may result in improved health and social outcomes for this population while promoting greater engagement of young adults in care.

  • employment
  • young adults
  • scoping review
  • mental health

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

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Strengths and limitations of this study

  • Overview summary of the barriers and facilitators to employment for young adults with mental illness.

  • Wide scope of barriers and facilitators were reviewed.

  • Full-text review and data extraction completed by two reviewers.

  • Most studies had small sample sizes and lacked consistent measurement of outcomes.

Introduction  

Mental illness is a widespread global challenge that affects approximately one in four young people at some point in their lives,1–3 with people aged 12–24 years experiencing the highest incidence of mental disorders of any age group.4 5 Adolescence and early adulthood are considered the peak periods for the onset of mental illness, with 75% of all diagnoses having an onset before the age of 25 years.6–8 Mental illness in young adults affects all education and income levels and all cultures.5 6 9 The global economic and societal burden of mental health disorders for this age group is rising at an alarming rate.9 10 Nevertheless, this age group has been shown to have the greatest challenge in accessing mental health services.11 12 Global mental health services have been described as ‘largely inadequate and unsuited to their [age-related] needs’.13 14 There is an international call to urgently re-examine how mental health services are delivered for youth.10 12 15–20 In order to reduce the impact of mental illness, and to increase the likelihood of recovery for young people, transformative change and service redesign are necessary.21

Recovery, in the context of mental healthcare and psychosocial rehabilitation, is defined as ‘the ability to live a full and meaningful life’.22 The greatest chance of recovery is associated with having an illness identified, receiving an intervention early and accessing ongoing support.9 15 21 23–25 One of the best indicators of recovery for adults with mental illness is the ability to obtain and maintain meaningful employment.11 26 High-quality studies have repeatedly shown that employment is associated with reductions in negative symptoms associated with a diagnosis of a mental illness, improvement in overall well-being and enhanced perception of social inclusion and self-worth.11 27–32 Yet approximately 70%–90% of people with a serious mental health condition are unemployed—this, despite increasing evidence suggests that the majority of them desire to work.33–35 Although limited research is available regarding how young adults with mental illness view employment as an outcome important for recovery, the promise of shifting towards what is important to youth and their families is now being emphasised.12 36–40 Employment may not only be a promising outcome for young adults in terms of symptomatic and functional recovery, but also a mechanism to engage young people who may not otherwise have sought support from mental health services.12

As research continues to emerge regarding timely integrated youth health services for young adults with mental illness,12 there is a strong case for mental health services to integrate employment-support components within the current model of service delivery.41–44 Incorporating employment into community mental health services for young adults may have a substantial impact at the individual, familial and societal level, thereby advancing health-related outcomes for this population.45 46 These impacts may include decreased hospital admissions, reduced interaction with the justice system, improved mental health and reduction of costs to the system.28 47 Yet, most often, health and employment services are offered in silos, inherently rigid systems that do not communicate and can increase the potential for poor quality patient experiences and outcomes. In order to strengthen the case for preparing youth with mental illness early on for employment, it is vital for researchers, clinicians and policy-makers to understand the barriers and facilitators to employment for the individuals and the system. This information will help communities strategise ways for health and social services to work together and meet the needs of young people and their families.

The aim of this work is to understand the barriers and facilitators to employment for youth with mental illness. In this study, we outline the breadth of knowledge available regarding obtaining and maintaining employment for young adults with mental illness and implementing employment programmes within mainstream mental health services.

Methods

Our scoping review drew on existing literature to understand what is known about the barriers and facilitators to employment for young adults with mental illnesses. As compared with systematic reviews, scoping reviews have a very broadly defined research question, include all study types, and track data according to key issues and themes.43 We followed a five-stage commonly used methodological framework48 to complete this review, including: (1) identification of the research question, (2) identification of all relevant studies, (3) selection of studies for detailed analysis, (4) charting of the data according to key concepts and (5) collation and summarising the findings of selected studies.

For the first stage of the scoping review, the research question that guided the review was: What are the barriers and facilitators to employment for young adults with mental illness? In stage 2 of the review, a reference librarian was consulted in order to determine search terms, identify relevant databases, and build the search protocol with the team. Our team derived significant terms extracted from the research question and expanded on these terms to create a comprehensive list of primary search words and their variants, including ‘mental disorders’, ‘anxiety disorders’, ‘bipolar’, ‘dissociative disorders, ‘multiple personality disorder’, ‘mood disorders’, ‘personality disorders’ and ‘schizophrenia or psychotic disorders’, as well as a combination of the following work-related terms: ‘employment’, ‘employment, supported’, ‘unemployment’, ‘workplace’ and ‘occupation’ (see table 1). Combination of these terms were tested iteratively across the following databases on 28 July 2016: MEDLINE (1946–July 2016), ABI/inform (1986–July 2016), CINAHL (1982–July 2016), Embase (1974–July 2016), PsycINFO (1880–July 2016) and Cochrane (2005–July 2016) to allow for the identification of new combinations of terms or other related citations. In the late 1980s, frameworks for incorporating employment into health services for young adults with disabilities began to be consolidated in clinical practice.49–54 As a results, our scoping review search was limited to studies from January 1985 and beyond. We also searched Medical Subject Heading (MeSH) terms, MeSH tree and related terms found in keywords and article references, and truncation was used for maximum recall when applicable. All searches included at least one identifier for mental disorder linked to at least one identifier for employment. The initial cut-off day for this scoping review was 28 July 2016. A Google Scholar and Medline follow-up search was conducted on 1 October 2018, to ensure any new studies were included. Table 1 outlines the search strategy used in each database.

Table 1

Search strategy terms used for each data-based searched

We included studies with employment-seeking young adults, aged 15–29 years, with a mental health diagnosis. This age group was chosen in order to best reflect the context of study and the challenges faced by those with an emerging mental illness who are attempting to seek paid work. We recognise, in many bodies of literature, youth are defined as 15–24 years of age.12 Many sources of peer-reviewed literature reference the 1981 United Nations report,55 where the secretary-general first referred to this age definition in a report to the General Assembly on International Youth Year (A/36/215, para. 8 of the annex)56 and endorsed it in ensuing reports (A/40/256, para. 19 of the annex).57 However, in the report,55 the secretary-general also highlighted that, ‘the meaning of the term ‘youth’ varies in different societies around the world’. For example, in Canada, most youth employment programmes are targeted for youth <30 years of age. As such, the definitions of age (<30) and each other aspect of the population (mental health status, gender, ethnicity) have been left broad in order to maintain a wide approach that generates a breadth of coverage of the topic.

For stage three of the scoping review, two research team members (TG and CB) independently screened all titles and abstracts of every study identified in the electronic search. We included all relevant articles published in English or French that described employment services for young adults with mental illness. In addition, we limited our search to human subjects and studies with young adults under 30 years old. The main qualifications that determined if studies were included in the relevant tables were: (1) the population was in the young adult age range of 15–29 years, (2) the population had a mental illness diagnosis and (3) the study had a primary focus on attaining employment. If all three of these criteria were addressed, the barriers and facilitators in the study were then examined and extracted. Country of origin and study format did not have any influence on determining relevance to this scoping review. We did not screen for methodology or levels of evidence.

In order to chart the data, we synthesised the studies and sorted each study according to key themes and ‘barriers and facilitators to employment’. Barriers and facilitators were sorted according to how they were specified in the article. If no such specification was available, three content experts (SB, LH, GL) with over 10 years of clinical experience were consulted to determine what category the theme should be placed. We charted data based on author, year of publication, study location, study type, intervention (if applicable), study population and key results (barriers and facilitators to employment).

Finally, we synthesised and sorted data according to key issues and themes to present a narrative account of the existing literature.48 Themes were categorised broadly. All team members reviewed the themes, and consensus was reviewed for the label of each theme. The main purpose of this scoping review was to identify the breadth of literature in this area of study, and whether there are any gaps in service identified within the subject matter. As a result, we did not complete an assessment of the quality of evidence, nor did we determine whether particular studies provide robust or generalisable findings.48

Patient and public involvement

This study is related to a prospective study currently under way that is examining the experiences of young adults participating in employment interventions (study Principal Investigator: SPB). The research question and data extraction variables for this study were informed by young adults participating in an existing employment programme in Vancouver, Canada. Two focus groups of eight youth, age 19–29, were invited to participate. Participants were recruited through a youth health centre in Vancouver called Foundry (foundrybc.ca), and the surrounding community. Results of this study will be presented to these participants (November 2018) in a modified world-café format. A 1-page summary of this project will also be developed and disseminated to the Foundry centres in British Columbia (n=7) and targeted policy and health services decision-makers.

Results

The initial search generated a total of 8037 results. After removing duplicates and performing a preliminary screen to ensure the inclusion criteria was met, a total of 488 titles and abstracts were identified. These were further screened to ensure that they addressed the appropriate age range, had a focus on employment, and that the participants had a diagnosis of a mental illness. As stated in terms of selection criteria, manual screening performed by the researchers generated a total of 33 articles that were carefully examined, and divided into relevant (n=19) and non-relevant studies (n=14). After the updated search from 2016 to 1 October 2018, we found an additional five articles now included in the review (total n=24 articles). Table 2 lists the relevant studies, and figure 1 describes the details for how we arrived at the final set of studies.

Figure 1

Preferred Reporting Items for Systematic Reviews and Meta-Analyses diagram outlining study selection.

Table 2

Details of included articles (n=24) including study origin, findings, barriers, facilitators and limitations

Of the 24 relevant articles, 11 were from the USA, four were from Australia, four from the UK, two from Canada, one from New Zealand and one from the Netherlands. Results showed that a concentration on employment for young adults with mental illness is occurring, for the most part, in the Western world, with the USA being the focal area of research, primarily in the area of first episode psychosis and early intervention treatment. Of the 124 articles, 8 were published between 1999 and 2009, and 15 were published between 2010 and 2018. Although the search criteria allowed for articles published from 1985, the researchers were unable to identify any relevant articles from 1985 to 1998.

This scoping review identified several themes in regards to the barriers and facilitators to employment for youth with mental illness. As shown in figure 2, the four main themes extracted from the literature were: (1) integrated health and social services, (2) age-exposure to employment supports, (3) self-awareness and (4) sustained support over the career trajectory.

Figure 2

Common themes found in the scoping review about the barriers and facilitators to employment for young adults with mental illness.

Integrated health and social services

The scoping review found that having an employment intervention in addition to usual mental health treatment led to higher success rates for young adults with mental illness15 42–44 58–64 (as identified in table 2). For example, one youth-tailored employment intervention resulted in 65% of the intervention group gaining employment, compared with only 9% of the control group.45 Two studies found that youth-tailored employment support, when delivered concurrently with conventional mental health therapies, led to improved health and employment outcomes.41 43 Porteous and Waghorn46 suggested that having both interventions (health and employment) in the same physical site mutually reinforced these successes.

Throughout many of the studies reviewed, the two central frameworks often identifed when addressing employment outcomes for youth were the recovery-oriented framework and the biomedical model. The biomedical model was defined as physical or biological aspects of disease and illness. In these studies, success was achieved when there is an absence of the disease and/or disorder or improvement in symptomology.65 In contrast, the recovery model focuses on ‘living a satisfying, hopeful, contributing life, despite psychiatric disability or symptoms’. (Piat et al, p168)66 Our results suggest that the paradigm used to guide intervention and care may shape how young adults gain and maintain employment. For instance, two studies highlighted that the biomedical model was a major barrier to finding employment for this population,46 67 and three studies suggested that the recovery-oriented framework was a facilitator to increased rates of employment for young adults, based on its holistic perspective of physical, mental, social and spiritual health.41 59 68

Age-exposure to employment support

While the literature is still growing for this population, the scoping review found many suggestions that age-exposure to employment-related interventions was critical to employment success and sustainability. Studies in this review suggested that earlier exposure to employment programming was associated with improved long-term employment outcomes and more engagement from youth in other areas of treatment and rehabilitation.41 42 44 46 58 61 63 69 70 Some studies also emphasised that in addition to early employment intervention, early diagnosis of a mental illness was also essential to ensure that young adults have access to the full range of treatments and interventions needed to optimise their potential to self-manage with their condition and thrive in the community.15 63 71 The review also highlighted a need to include and reach out to families and social networks early. Family and friends were reported in two studies as discouraging youth from employment, and thereby acting as barriers.64 72 73

One of the main temporal issues that was discussed across several studies was the focus on ‘finding a job’ as opposed to seeking a ‘long-term career’. The goal of finding a career was described in the literature as a potential barrier and not always applicable to this age group.41 68 Some studies in the review highlighted that youth felt many existing programmes were too focused on ‘getting a job’ rather than supporting milestones along journey of employment and career construction.60 74 The results of this review yielded a concentration of studies focused on supporting young adults to have a variety of skill development experiences, thereby helping a young adult achieve their goal of finding a first job.41 42 44 46 74

Self-awareness and autonomy

All studies collectively identified that seeking employment can be a challenging endeavour, especially for young adults doing so for the first time. For better chances of success in finding employment, studies in the review suggested that harnessing feelings of hope and optimism about themselves and their career prospects is vital to employment success.41 Some studies identified that young adults reported feeling more optimistic about jobs in which they can learn and progress, leading to greater senses of accomplishment and self-worth.41 74 One participant in study #2 described the impact of employment on self-esteem as:

“a vicious circle, ‘cause you don’t have any work and you don’t bring in an income and it gives you no self-esteem, and then you don’t want to get up and go get a job.” (Bassett et al, p68)27

Self-worth and self-esteem were identified throughout all studies as being important for this age group.

Our review also found that programmes allowing young adults to choose the jobs they pursued further empowered them to take control of their career goals and aspirations for the future, in addition to finding employment.42 44 The ability to choose was identified as a central asset for this age group: our review identified that, while many programmes focus primarily on the retention of jobs, the young people themselves do not always share this priority. Giving young adults the right to both choose and leave jobs, allowing them to explore career opportunities and pursuing opportunities to develop more skills, were key facilitators to job and career development for this population.41 44

Sustained integrated care

Sustained employment support was identified as a major barrier to short-term and long-term employment success for young adults. Many of the studies identified in this review did not continue to provide support for participants beyond their end of the job-seeking period.41–44 A short duration of support was identified as a major barrier for young adults with mental illness (ranging from 2 to 16 weeks). The scoping review highlighted that programmes with short follow-up periods were more likely than programmes with long follow-up periods to result in poor employment outcomes for youth.27 42 60 Although the studies reviewed are relatively recent, the data support the benefits of continued support to help youth with their employment goals.69 For example, a number of studies42 44 75 suggested that youth employment programmes may work best when focusing on the continued success of retaining employment and career development in general.44 68 76–78 Of critical importance, most studies in this review suggested that ongoing support to integrate both health and employment/career development goals, is a significant facilitator to ensure that young adults with have the capacity to gain the skills necessary to manage long-term employment.27 31 41 46 58 63 68 69 72 79

Discussion

This review describes the current literature related to the facilitators and barriers for young adults with mental illness who are seeking employment. A scoping review was chosen in order to determine the breadth of the literature for this topic. While there were no other systematic reviews or meta-analyses of the literature identified in this research area, this scoping review did identify a number of studies that investigated adults (age 29+) with mental illness who were seeking employment. These studies were excluded based on the allotted age range criteria. However, they nonetheless found similarities to the studies included as relevant in the scoping review, such as the importance of integrated support, sustained access to health and employment services that are not time-limited, and a focus on employment as a vehicle towards improved health outcomes.14 80 81

This scoping review identified 24 relevant articles, of which there were a number of methodologies, type of interventions and/or research questions. This disparity suggests that the literature in this field of study is still developing, and alludes to the diverse approaches taken to understanding the field. The articles were published between 1999–2018, with the majority (n=16) published between 2010 and 2018. The studies were predominantly completed in English-speaking countries (n=23) with a high volume from the USA (n=12), while others were completed in Australia (n=4), New Zealand (n=1) and the UK (n=4). Common facilitators included high self-efficacy,31 43 68 early intervention,27 41 46 68 69 participation in a supported employment programme,31 41 45 46 58 68 82 and a long-term follow-up after intervention.27 41 Barriers included the use of exclusion criteria,41 58 68 lack of social capital,61 64 75 stigma in the workplace,27 64 history of criminal justice involvement,44 58 inadequate training opportunities27 61 73 and lack of ongoing integrated funding for programming.27 68

Among these barriers, four overarching themes were identified in this review. These themes may add value to the way that employment and health services are currently designed and implemented for the young adult population. Our review emphasised that the transition from adolescence to adulthood is a typical process of development, but for many young adults with mental health conditions, this transition can be especially difficult.69 Most studies highlighted that young adults have unique needs that are different from those of older adults. Creating a programme designed specifically for this age group may allow professionals to better understand their needs, and provides opportunities to further young people’s professional development despite the barriers of mental illness. For the young adult population, retaining the same job may not be indicative of a successful employment pattern; rather, our review suggests that young people with mental illness may require the opportunity to explore various jobs in order to expand their skill set. Our review suggests that young adults with mental health conditions should be afforded the same opportunities as their peers by receiving tailored supported employment programmes designed to support their dynamic health and employment goals.41 Additionally, increasingly more studies emphasise that young adults should be involved in co-designing these integrated services so that they are centred on the needs of youth, rather than the system alone.12 40 Most studies in our review emphasised that long-term follow-up support is critical for this population to help them navigate the employment landscape. As youth acquire new jobs, they may also benefit from continued support throughout these subsequent transitions to maximise their success, self-esteem and overall well-being.

Our scoping review results support emerging literature that suggests that incorporating vocational interventions at the onset of illness can have both short-term and long-term effects, including the development of skills and interests, and a decrease in the likelihood of chronic unemployment which in turn can shape health outcomes.27 41–45 58 67–69 74 83 84 Our review did highlight notable heterogeneity in the interventions delivered; however, one common theme identified that supported employment intervention, when integrated with mental health treatment, may offer young adults an increased probability for employment success. More research is needed to outline evidence-based models of employment support for this group that can be integrated into existing health services. Such information will be important when helping youth learn to self-manage their illness while also achieving their employment goals.44 In addition, this information is critical to support policy decisions to fund employment interventions as core services for youth mental health services and programmes.

Another area of future research is to understand the components of supported employment interventions that can produce meaningful outcomes for youth. Our review identified a lack of standardisation for how these services have been developed and delivered. Further work in close collaboration with youth and key stakeholders is needed (ie, clinicians, family, funders) to tailor supported employment programmes that can be scaled across mental health services and can be delivered early in the care pathway.85 Given the increasing emphasis on patient-oriented research across developed countries,86–89 there is an ideal opportunity for future research in this area to be conducted in partnership with relevant stakeholders, notably youth. By working with youth research partners to develop and test such interventions, mental health services have the opportunity to foster evidence-informed healthcare by bringing innovative rehabilitation approaches to the point of care for young adults with mental illness.

While it is not the main tenet of a scoping review, it must be acknowledged that a thorough investigation into the quality of the literature was not completed. Despite the lack of analysis based on study rigour, our review did identify that many studies were descriptive in methodology, and did not include control groups. As well, most studies had small sample sizes and lacked consistent measurement of outcomes. In order to optimise decision-making, evidence from well-designed studies is needed to develop health services, guidelines and policies that apply to this young adult population. Such clarity around employment and integrated approaches to treatment may have significant potential to improve performance, accountability and innovation of youth mental health services worldwide.

In conclusion, the health and well-being of young adults with mental illness is a topic of global concern. Our review suggests that the employment goals of the young adult population are important to them, and therefore should be recognised by the mental health system as an area to address and improve upon. This paper presents preliminary evidence for the benefit of integrating employment intervention and mental health services, specifically highlighting the barriers and facilitators for this population to obtain employment. Collectively, the studies included in the review emphasise that it cannot be assumed that young adults can be sized into an adult model of care in relation to their employment and mental health needs; tailored programmes are required to address youth-specific needs. Aligning the mental health and employment priorities of young adults may enable efficiency in achieving improved outcomes for this population, while promoting greater engagement of young adults in care and accountability of mental health services worldwide.

Acknowledgments

Appreciation is extended to Dr Letitia Henville, Department of Occupational Science and Occupational Therapy, University of British Columbia, for editorial support.

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Footnotes

  • TG and CB contributed equally.

  • Contributors SPB is the senior and corresponding author. She has taken the primary responsibility for communication with the journal during the manuscript submission, peer review and publication process, and has ensured that all the journal’s administrative requirements, such as providing details of authorship, and gathering conflict of interest forms and statements, are properly completed, although these duties may be delegated to one or more coauthors. SPB has also designed the study, contributed to the writing of the manuscript and oversight of graduate student responsibilities to complete this work. TG and CBr conducted the scoping review, participated in data extraction and synthesis, and wrote the first draft of the paper for submission as their research project for completion of a Master’s degree in Occupational Therapy at the University of British Columbia. LH, GL, PB and SM contributed to the study design, search strategy, interpretation of study results and review of the manuscript. All four authors reviewed the accuracy and integrity of the work. All four authors provided specific content clinical expertise to inform the discussion and implications of the study results (from the perspective of occupational therapy, psychiatry and peer support). AL was the research coordinator on the project. She coordinated all aspects of the study, including drafting the protocol, acting as the byline between the library and the students, reviewing the first draft of the manuscript and addressing reviewer comments. CBe was the study librarian on the study. She cobuilt the search strategy with the graduate students and contributed to the draft and review of the methods of this manuscript. She also reviewed the accuracy and integrity of the work.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Patient consent Not required.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement Dataset is available from corresponding author on request.

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