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  • What information needs do people with recently diagnosed diabetes mellitus have and what are the associated factors? A cross-sectional study in Germany

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Diabetes and endocrinology
Research
What information needs do people with recently diagnosed diabetes mellitus have and what are the associated factors? A cross-sectional study in Germany
  1. Sandra Grobosch1,2,3,
  2. Silke Kuske1,2,
  3. Ute Linnenkamp1,3,
  4. Nicole Ernstmann4,
  5. Astrid Stephan2,
  6. Jutta Genz1,
  7. Alexander Begun1,5,
  8. Burkhard Haastert2,6,
  9. Julia Szendroedi3,7,8,
  10. Karsten Müssig3,7,8,
  11. Volker Burkart3,8,
  12. Michael Roden3,7,8,
  13. Andrea Icks1,2,3
  14. for the GDS Group
    1. 1 Institute for Health Services Research and Health Economics, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany
    2. 2 Institute for Health Services Research and Health Economics, Centre for Health and Society, Faculty of Medicine, Heinrich Heine University Düsseldorf, Düsseldorf, Germany
    3. 3 German Center for Diabetes Research (DZD), München-Neuherberg, Germany
    4. 4 Department for Psychosomatic Medicine and Psychotherapy, Center for Health Communication and Health Services Research, University Hospital of Bonn, Bonn, Germany
    5. 5 Institute for Biometrics and Epidemiology, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany
    6. 6 mediStatistica, Neuenrade, Germany
    7. 7 Division of Endocrinology and Diabetology, Faculty of Medicine, Heinrich Heine University Düsseldorf, Düsseldorf, Germany
    8. 8 Institute for Clinical Diabetology, German Diabetes Center, Leibniz Center for Diabetes Research at the Heinrich Heine University Düsseldorf, Düsseldorf, Germany
    1. Correspondence to Sandra Grobosch; sandra.grobosch{at}ddz.uni-duesseldorf.de

    Abstract

    Objectives This study aimed to identify: (1) information needs of people with recently diagnosed type 1 or type 2 diabetes mellitus (DM); (2) information needs within different subgroups; and (3) factors associated with information needs concerning DM such as current level of information, health-related quality of life or participation preferences.

    Design A mixed-method approach combining quantitative and qualitative methods was used. Information needs for different topics and estimated associated factors were described using logistic regression models. Additionally, a qualitative content analysis was performed.

    Setting Monocentre study.

    Participants Information needs were assessed and analysed in 138 consecutive participants with DM who took part in the German Diabetes Study (54% type 2 diabetes, 64% male, mean age 46.3±12.3 years, known diabetes duration <1 year).

    Results Most participants displayed a need for information in all topics provided, especially in diabetes research (86%) and treatment/therapy (80%). Regarding those topics, participants wished for information regarding new treatments that simplify their everyday life. In general, participants preferred topics that focus on the management or handling of DM over topics related to clinical factors of DM, such as causes and complications. A low current level of information and treatment with antihyperglycaemic medication were significantly associated with higher information needs, and diabetes-related comorbidity and higher mental component summary score in the 36-Item Short-Form Health Survey (SF-36) with lower information needs.

    Conclusion People with recently diagnosed DM display high information needs, which differ according to the current level of information, mode of diabetes treatment, diabetes-related comorbidity and mental component summary score in the SF-36. There appears to be a preference for information, which can help to simplify life with diabetes and for information that corresponds to their level of knowledge. This should be considered in patient information activities.

    Trial registration number NCT01055093.

    • recently diagnosed diabetes mellitus
    • information needs
    • german diabetes study
    • patient-centred care

    This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

    https://doi.org/10.1136/bmjopen-2017-017895

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      Footnotes

      • SG and SK shared first authorship.

      • 34 MR and AI shared senior authorship.

      • Contributors AI, MR, JS, KM, VB, SG, SK, UL, NE, AS and JG contributed to the concept, design and drafting of the present study. AI, SG, SK, AB and BH developed the design of the analysis. SG, AB and BH conducted formal analysis. SK and AI supervised the analysis process. SG, SK and AI contributed to the writing of the manuscript; all authors were involved in editing. All authors read and approved the final manuscript.

      • Funding The present study was funded by the German Federal Ministry of Education and Research (BMBF) to the German Center for Diabetes Research (DZD e.V.) and the Research Commission of the Faculty of Medicine of the Heinrich Heine University Düsseldorf. The German Diabetes Study was initiated and financed by the DDZ – German Diabetes Center, which is funded by the German Federal Ministry of Health (Berlin, Germany) and the Ministry of Culture and Science of the state North Rhine-Westphalia (Düsseldorf, Germany) and from the German Federal Ministry of Education and Research (BMBF) to the German Center for Diabetes Research (DZD e.V.).

      • Competing interests None declared

      • Patient consent Not required.

      • Ethics approval The GDS was approved by the ethics committee of Heinrich Heine University Düsseldorf (study reference number 4508, previous reference number 2478).

      • Provenance and peer review Not commissioned; externally peer reviewed.

      • Data sharing statement All available data can be obtained from the corresponding author.

      • Collaborators The GDS Group consists of M Roden (speaker), H Al-Hasani, A E Buyken, J Eckel, G Geerling, C Herder, A Icks, J Kotzka, O Kuß, E Lammert, D Markgraf, K Müssig, W Rathmann, J Szendroedi, D Ziegler and their coworkers.