Article Text

Download PDFPDF

Understanding patients’ experiences of the wish to hasten death: an updated and expanded systematic review and meta-ethnography
  1. Andrea Rodríguez-Prat1,
  2. Albert Balaguer2,
  3. Andrew Booth3,
  4. Cristina Monforte-Royo4
  1. 1 Faculty of Humanities, Universitat Internacional de Catalunya, Barcelona, Spain
  2. 2 School of Medicine and Health Sciences, Universitat Internacional de Catalunya, Barcelona, Spain
  3. 3 School of Health and Related Research (ScHARR), University of Sheffield, Sheffield, UK
  4. 4 Nursing Department, School of Medicine and Health Sciences, Universitat Internacional de Catalunya, Barcelona, Spain
  1. Correspondence to Dr Cristina Monforte-Royo; cmonforte{at}uic.es

Abstract

Objectives Patients with advanced disease sometimes express a wish to hasten death (WTHD). In 2012, we published a systematic review and meta-ethnography of qualitative studies examining the experience and meaning of this phenomenon. Since then, new studies eligible for inclusion have been reported, including in Europe, a region not previously featured, and specifically in countries with different legal frameworks for euthanasia and assisted suicide. The aim of the present study was to update our previous review by including new research and to conduct a new analysis of available data on this topic.

Setting Eligible studies originated from Australia, Canada, China, Germany, The Netherlands, Switzerland, Thailand and USA.

Participants Studies of patients with life-threatening conditions that had expressed the WTHD.

Design The search strategy combined subject terms with free-text searching of PubMed MEDLINE, Web of Science, CINAHL and PsycInfo. The qualitative synthesis followed the methodology described by Noblit and Hare, using the ‘adding to and revising the original’ model for updating a meta-ethnography, proposed by France et al. Quality assessment was done using the Critical Appraisal Skills Programme checklist.

Results 14 studies involving 255 participants with life-threatening illnesses were identified. Five themes emerged from the analysis: suffering (overarching theme), reasons for and meanings and functions of the WTHD and the experience of a timeline towards dying and death. In the context of advanced disease, the WTHD emerges as a reaction to physical, psychological, social and existential suffering, all of which impacts on the patient’s sense of self, of dignity and meaning in life.

Conclusions The WTHD can hold different meanings for each individual—serving functions other than to communicate a genuine wish to die. Understanding the reasons for, and meanings and functions of, the WTHD is crucial for drawing up and implementing care plans to meet the needs of individual patients.

  • Palliative Care
  • qualitative research
  • medical ethics
  • oncology

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

View Full Text

Statistics from Altmetric.com

Footnotes

  • Contributors CM-R and ABa designed the study. CM-R collected data. CM-R and ARP conducted data analysis. ARP, CM-R and ABa wrote the manuscript. ABa and ABo made substantial contributions to the identification of relevant literature, the interpretation of findings and were involved in drafting the manuscript and revising it critically. All authors gave final approval to this manuscript.

  • Funding This study was supported by the Junior Faculty programme grant, cofinanced by L’Obra Social ‘La Caixa’, the Instituto de Salud Carlos III (PI14/00263) and the European Regional Development Fund (FEDER). We are also grateful for the support given by Recercaixa 2015 and WeCare Chair: End-of-life care at the Universitat Internacional de Catalunya and ALTIMA.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement All data supporting this study are provided as supplementary information accompanying this paper. Further information can be obtained from the corresponding author.

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.