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Integrating the perspectives of individuals with spinal cord injuries, their family caregivers and healthcare professionals from the time of rehabilitation admission to community reintegration: protocol for a scoping study on SCI needs
  1. Alexander Moreno1,2,
  2. Diana Zidarov1,2,
  3. Chandhana Raju1,2,
  4. Jill Boruff3,
  5. Sara Ahmed1,2
  1. 1 Faculty of Medicine, School of Physical and Occupational Therapy, McGill University, Montreal, Canada
  2. 2 Center for Interdisciplinary Research in Rehabilitation of Greater Montreal, Montreal, Canada
  3. 3 Schulich Library of Science and Engineering, McGill University, Montreal, Canada
  1. Correspondence to Dr Sara Ahmed; sara.ahmed{at}mcgill.ca

Abstract

Introduction There is fragmented information about the different needs following a spinal cord injury (SCI). Expressed SCI needs can be met or unmet, they change along the rehabilitation continuum (eg, acute, rehabilitation and reintegration into the community) and can be different for traumatic and non traumatic SCI. The general objective of this scoping study is to evaluate and integrate the needs of individuals with traumatic and non-traumatic SCI, their family caregivers and those reported by rehabilitation professionals from the time of rehabilitation admission to community reintegration. The specific objectives are to: (A) synthesise the needs of individuals with SCI as perceived by themselves, their family caregivers and rehabilitation professionals using two theoretical models, (B) classify needs as met and unmet, (C) explore the evolution of met/unmet needs from the time of rehabilitation admission to community reintegration and (D) provide recommendations to improve SCI care.

Methods and analysis (A) identifying the most frequent met and unmet needs reported by adults with traumatic and non-traumatic SCI, their family caregivers and their rehabilitation professionals from the time of rehabilitation admission to community reintegration; (B) identifying relevant studies with a search in electronic databases; (C) charting the data based on categories refined and adjusted with a stakeholder group; (D) collating, summarising and reporting the results using two analytical frameworks (Maslow's hierarchical model of human needs and the Ferrans et al's model of health-related quality of life) and (E) a stakeholder consultation phase.

Ethics and dissemination The results of this scoping study will allow understanding SCI needs from the time of rehabilitation admission to community reintegration from the perspective of different stakeholders. An integrated master report combining the needs of individuals with SCI from the perspectives of different stakeholders from the time of rehabilitation admission to community reintegration will follow the consultation meetings.

  • Spinal Cord Injury
  • needs
  • caregiver
  • healthcare
  • scoping study

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

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Footnotes

  • Contributors AM: conception and design, preliminary literature review, drafting of the manuscript, integrations of the edits in the different versions and manuscript submission; DZ: edits and feedback; CR: edits and feedback; JB: MLIS, AHIP database search; SA: conception and design, edits and feedback.

  • Funding This paper is part of the Lindsay foundation funded reserach program, Initiativesfor the Development of New Technologies and Innovative Practices in Rehabilitation (INSPIRE). Fonds de la recherche du Québec-Santé (FRQS). Networks of Centres of Excellence of Canada (AGE-WELL NCE).

  • Competing interests None declared.

  • Patient consent N/A.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement N/A.

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