Purpose More research into the psychosocial aspects of diabetes is needed so that the health and quality of life of people with the condition can be improved. To fill this gap, we conducted the second Diabetes MILES—Australia study (MILES-2), a survey focused on psychological, behavioural and social aspects of diabetes. The aim of the MILES-2 study was to provide a (1) longitudinal follow-up of the original MILES 2011 study cohort; (2) cross-sectional assessment of a new cohort.
Participants Eligible participants were English-speaking Australians with type 1 or type 2 diabetes, aged 18–75 years. Longitudinal cohort participants were mailed/emailed study invitations directly by researchers. Random sampling (stratified by diabetes type, insulin use, state) of the National Diabetes Services Scheme (NDSS) database and nationwide advertisements were used to recruit new cohort participants. The final sample included N=2342 eligible respondents (longitudinal cohort: n=504; 2015 new cohort: n=1838); 54% had type 2 diabetes.
Findings to date Survey respondents were from an advantaged socioeconomic background compared to the general population. Respondents with type 1 diabetes were over-represented in the new cohort (45%) relative to the planned stratification (40% type 1 diabetes, 60% type 2 diabetes). Respondents with insulin-treated type 2 diabetes were under-represented in the new cohort relative to the stratified sampling (42% invited vs 50% response). Participants who completed both the 2011 and 2015 surveys were more likely than those completing the 2011 survey only to have type 1 diabetes, report a higher education and annual income, and live in metropolitan areas. Participant feedback indicated that the survey was perceived as relevant and valuable.
Future plans The depth and breadth of the data available in this large sample will highlight unmet needs and priority areas for future investigation and, crucially, will inform policy, programme and intervention development and evaluation in Australia.
- MENTAL HEALTH
- PUBLIC HEALTH
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Contributors JS conceived The Diabetes MILES Study and, together with FP, developed The Diabetes MILES Study International Collaborative. All authors contributed to the development of the study design and survey content. JLB project managed MILES-2 and wrote the first draft of this this manuscript with substantial input from EHT. All authors provided substantial intellectual contributions to the manuscript by providing feedback on drafts. All authors approved the final manuscript.
Funding The key research personnel on this study were supported by core funding provided to The Australian Centre for Behavioural Research in Diabetes by Diabetes Victoria and Deakin University. Recruitment activities and the development of the study website were funded through an unrestricted educational grant (paid to The Australian Centre for Behavioural Research in Diabetes) from Sanofi ANZ. Sanofi ANZ was not involved in the study design, data collection or data analysis and had no input on the preparation of this manuscript.
Competing interests All authors have completed the ICMJE uniform disclosure at http://www.icmje.org/coi_disclosure.pdf and declare: financial support for the submitted work from Sanofi ANZ in the form of an unrestricted educational grant; JLB has carried out consultancy work for Sanofi ANZ, has served on a Sanofi ANZ advisory board, and has had travel expenses covered by Sanofi ANZ, with all monies given to her institution. FP has served on an advisory board for Sanofi-Aventis, with monies paid to him personally. JS has carried out consultancy work for Sanofi ANZ and has had travel expenses covered by Sanofi ANZ, with all monies paid to her institution. EHT, ADV and CH have no relevant conflicts of interest to declare.
Ethics approval This study was approved by the Deakin University Human research Ethics Committee (2011–046). All participants provided informed consent, having read a plain language description of the study, using a tick-box form (electronic or in hard copy).
Provenance and peer review Not commissioned; externally peer reviewed.
Data sharing statement The second Diabetes MILES—Australia survey data set is available for analysis by researchers with interest and expertise in this field. For further information, please contact: firstname.lastname@example.org.
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