Objective Updated knowledge on the validity of self-reported myocardial infarction (SMI) and self-reported stroke (SRS) is needed in Norway. Our objective was to compare questionnaire data and hospital discharge data from regions with Sami and Norwegian populations to assess the validity of these outcomes by ethnicity, sex, age and education.
Design Validation study using cross-sectional questionnaire data and hospital discharge data from all Norwegian somatic hospitals.
Participants and setting 16 865 men and women aged 30 and 36–79 years participated in the Population-based Study on Health and Living Conditions in Sami and Norwegian Populations (SAMINOR) 1 Survey in 2003–2004. Information on SMI and SRS was available from self-administered questionnaires for 15 005 and 15 088 of these participants, respectively. We compared this information with hospital discharge data from 1994 until SAMINOR 1 Survey attendance.
Primary and secondary outcomes Sensitivity, specificity, positive predictive value (PPV), negative predictive value and κ.
Results The sensitivity and PPV of SMI were 90.1% and 78.9%, respectively; the PPV increased to 93.1% when all ischaemic heart disease (IHD) diagnoses were included. The SMI prevalence estimate was 2.3% and hospital-based 2.0%. The sensitivity and PPV of SRS were 81.1% and 64.3%, respectively. The SRS prevalence estimate was 1.5% and hospitalisation-based 1.2%. Moderate to no variation was observed in validity according to ethnicity, sex, age and education.
Conclusions The sensitivity and PPV of SMI were high and moderate, respectively; for SRS, both of these measures were moderate. Our results show that SMI from the SAMINOR 1 Survey may be used in aetiological/analytical studies in this population due to a high IHD-specific PPV. The SAMINOR 1 questionnaire may also be used to estimate the prevalence of acute myocardial infarction and acute stroke.
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Contributors SG-I introduced the idea for the study. B-ME performed the statistical analyses and drafted the manuscript. MM performed the linkage of data sources and assisted with the statistical analyses. MM, SG-I, KBB, TB, ARB and GST helped draft the manuscript.
Funding The SAMINOR 1 Survey was financed by the Ministry of Health and Care services. CVDNOR received funding from Nasjonalforeningen for folkehelsen. The North Norwegian Regional Health Authority provides B-ME's postdoctoral research grant.
Competing interests None declared.
Ethics approval The SAMINOR 1 Survey was approved by the Regional Committee for Medical Research Ethics, region North (REC North) and the Norwegian Data Protection Authority. CVDNOR as a project was approved by the Regional Committee for Medical and Health Research Ethics, region west (REC west). This validation study was approved by REC North.
Provenance and peer review Not commissioned; externally peer reviewed.
Data sharing statement No additional data are available.
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