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The Sight Loss and Vision Priority Setting Partnership (SLV-PSP): overview and results of the research prioritisation survey process
  1. Fiona Rowe1,2,
  2. Richard Wormald3,4,
  3. Richard Cable5,
  4. Michele Acton5,
  5. Karen Bonstein6,
  6. Michael Bowen7,
  7. Carol Bronze8,
  8. Catey Bunce3,4,6,
  9. Dolores Conroy5,
  10. Katherine Cowan9,
  11. Kathy Evans10,
  12. Mark Fenton11,
  13. Heather Giles8,
  14. Iris Gordon4,
  15. Louise Halfhide6,
  16. Robert Harper12,
  17. Anita Lightstone13,
  18. Marcela Votruba14,
  19. Heather Waterman15,
  20. Antra Zekite3
  1. 1British and Irish Orthoptic Society, London, UK
  2. 2Department of Health Services Research, University of Liverpool, Liverpool, UK
  3. 3Research and Development Department, Moorfields Eye Hospital NHS Foundation Trust, London, UK
  4. 4The Cochrane Eyes and Vision Group, London School of Hygiene and Tropical Medicine, London, UK
  5. 5Fight for Sight, London, UK
  6. 6NIHR Biomedical Research Centre at Moorfields and UCL Institute of Ophthalmology, London, UK
  7. 7College of Optometrists, London, UK
  8. 8London, UK
  9. 9The James Lind Alliance (JLA)—National Institute for Health Research, Southampton, UK
  10. 10Royal College of Ophthalmologists, London, UK
  11. 11UK DUETs (NICE Evidence—UK Database of Uncertainties about the Effects of Treatments), London, UK
  12. 12Manchester Academic Health Sciences Centre, Manchester Royal Eye Hospital, Manchester, UK
  13. 13UK Vision Strategy/VISION 2020 UK, London, UK
  14. 14School of Optometry and Vision Sciences, Cardiff University, Cardiff, UK
  15. 15School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK
  1. Correspondence to Dr Fiona Rowe; rowef{at}liverpool.ac.uk

Abstract

Objectives The Sight Loss and Vision Priority Setting Partnership aimed to identify research priorities relating to sight loss and vision through consultation with patients, carers and clinicians. These priorities can be used to inform funding bodies’ decisions and enhance the case for additional research funding.

Design Prospective survey with support from the James Lind Alliance.

Setting UK-wide National Health Service (NHS) and non-NHS.

Participants Patients, carers and eye health professionals. Academic researchers were excluded solely from the prioritisation process. The survey was disseminated by patient groups, professional bodies, at conferences and through the media, and was available for completion online, by phone, by post and by alternative formats (Braille and audio).

Outcome measure People were asked to submit the questions about prevention, diagnosis and treatment of sight loss and eye conditions that they most wanted to see answered by research. Returned survey questions were reviewed by a data assessment group. Priorities were established across eye disease categories at final workshops.

Results 2220 people responded generating 4461 submissions. Sixty-five per cent of respondents had sight loss and/or an eye condition. Following initial data analysis, 686 submissions remained which were circulated for interim prioritisation (excluding cataract and ocular cancer questions) to 446 patients/carers and 218 professionals. The remaining 346 questions were discussed at final prioritisation workshops to reach agreement of top questions per category.

Conclusions The exercise engaged a diverse community of stakeholders generating a wide range of conditions and research questions. Top priority questions were established across 12 eye disease categories.

  • Sight loss
  • Vision
  • Research
  • Priorities
  • Partnership
  • James Lind Alliance

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/

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