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  • What are the views of adults with an intellectual disability (AWID), carers and healthcare professionals on a community falls management programme for AWID: a qualitative interview study in the UK

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Health services research
Original research
What are the views of adults with an intellectual disability (AWID), carers and healthcare professionals on a community falls management programme for AWID: a qualitative interview study in the UK
  1. Katie Robinson1,2,
  2. Phillipa Logan1,3,
  3. Carol Tucker4,
  4. Janet Finlayson5,
  5. Veronika van der Wardt1,6,
  6. Alice Kilby7,
  7. Sue Knowles4,
  8. Stevie Vanhegan4,
  9. Stuart Hodgson7,
  10. Nicola Lidstone2
  1. 1Centre for Rehabilitation and Ageing Research, University of Nottingham, Nottingham, UK
  2. 2Research and Innovation, Nottingham University Hospitals NHS Trust, Nottingham, UK
  3. 3Nottingham CityCare Partnership CIC, Nottingham, UK
  4. 4Lay Collaborator, Nottingham, UK
  5. 5School of Health and Life Sciences, Glasgow Caledonian University, Glasgow, UK
  6. 6University of Marburg, Department of General Practice, Marburg, Germany
  7. 7Nottinghamshire Healthcare NHS Foundation Trust, Nottingham, UK
  1. Correspondence to Dr Katie Robinson; Katie.Robinson{at}nottingham.ac.uk

Abstract

Objectives The aim of this study was to refine a draft of the ACTiON FALLS LD programme based on the views of adults with an intellectual disability (AWID), carers and healthcare professionals (HCPs).

Design, setting and participants The semistructured interview study included HCP as well as AWID and carers supporting AWID living in the community. Community settings included sheltered living, supported living, AWID living at home with family carers or independently. The interview study explored the first draft of the ACTiON FALLS LD programme as well as the wider falls management for AWID. Interviews with AWID were developed to include a range of approaches (eg, case studies, pictures) to support inclusive participation. Individual interviews were digitally recorded and transcribed. Researcher notes were used during interviews with AWID. All data were analysed using the principles of framework analysis.

Results 14 HCP, 8 carers and 13 AWID took part in the interview process. Five key themes were identified: programme components, programme design, programme approach, who would use the programme and programme delivery.

Conclusions The views of AWID, HCP and carers showed the need to consider the impact of risk perception, anxiety and fear of falling in the adaption of the ACTiON FALLS programme. The programme needs to be accessible and support the inclusion of AWID in managing falls and ultimately fulfil the requirement for a proactive and educational tool by all.

  • geriatric medicine
  • rehabilitation medicine
  • public health

Data availability statement

Data are available on reasonable request. Data are available from the corresponding author on reasonable request.

http://creativecommons.org/licenses/by-nc/4.0/

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

https://doi.org/10.1136/bmjopen-2022-069588

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    Data availability statement

    Data are available on reasonable request. Data are available from the corresponding author on reasonable request.

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    Footnotes

    • Twitter @AliceKilbyPT

    • Contributors All authors developed the study concept and design. NL undertook the interviews. NL and KR analysed the interviews in discussion with all authors. All authors contributed to and agreed on the final manuscript. KR is the guarantor.

    • Funding This report is independent research funded by the National Institute for Health and Care Research (Research for Patient Benefit, Developing a falls management tool for older adults with intellectual disabilities in community settings, NIHR200744).

    • Disclaimer The views expressed in this publication are those of the author(s) and not necessarily those of the National Institute for Health Research or the Department of Health and Social Care.

    • Competing interests PL was the lead of the Falls in Care Homes trial and led the development of the ACTiON FALLS programme for community and care home settings, KR was a researcher on the Falls in Care Homes trial.

    • Patient and public involvement Patients and/or the public were involved in the design, or conduct, or reporting, or dissemination plans of this research. Refer to the Methods section for further details.

    • Provenance and peer review Not commissioned; externally peer reviewed.

    • Supplemental material This content has been supplied by the author(s). It has not been vetted by BMJ Publishing Group Limited (BMJ) and may not have been peer-reviewed. Any opinions or recommendations discussed are solely those of the author(s) and are not endorsed by BMJ. BMJ disclaims all liability and responsibility arising from any reliance placed on the content. Where the content includes any translated material, BMJ does not warrant the accuracy and reliability of the translations (including but not limited to local regulations, clinical guidelines, terminology, drug names and drug dosages), and is not responsible for any error and/or omissions arising from translation and adaptation or otherwise.