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  • Development of a person-centred digital platform for the long-term support of people living with an adult-onset genetic disease predisposition: a mixed-methods study protocol

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Genetics and genomics
Protocol
Development of a person-centred digital platform for the long-term support of people living with an adult-onset genetic disease predisposition: a mixed-methods study protocol

Authors

  • Stephanie Best Sir Peter MacCallum Department of Oncology, The University of Melbourne, Melbourne, Victoria, AustraliaDepartment of Health Services Research, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  • Abdullah Al Mahmud Centre for Design Innovation, Department of Architectural and Industrial Design, Swinburne University of Technology, Hawthorn, Victoria, Australia PubMed articlesGoogle scholar articles
  • Shivani Tyagi Department of Communication Design, School of Design and Architecture, Swinburne University of Technology, Hawthorn, Victoria, Australia PubMed articlesGoogle scholar articles
  • Jack C W Wheeler Parkville Familial Cancer Centre, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  • Abdur Rahim Mohammad Forkan Department of Computing Technologies, Swinburne University of Technology, Hawthorn, Victoria, Australia PubMed articlesGoogle scholar articles
  • Alexandra Lewis Parkville Familial Cancer Centre, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  • Nadeem Shuakat Department of Computing Technologies, Swinburne University of Technology, Hawthorn, Victoria, AustraliaDepartment of Health Sciences and Biostatistics, School of Health Sciences, Swinburne University of Technology, Hawthorn, Victoria, Australia PubMed articlesGoogle scholar articles
  • Rohit Kaul Department of Computing Technologies, Swinburne University of Technology, Hawthorn, Victoria, Australia PubMed articlesGoogle scholar articles
  • Aisha Ward Parkville Familial Cancer Centre, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  • Nilmini Wickramasinghe Department of Health Sciences and Biostatistics, School of Health Sciences, Swinburne University of Technology, Hawthorn, Victoria, AustraliaIverson Health Innovation Research Institute, Swinburne University of Technology, Hawthorn, Victoria, Australia PubMed articlesGoogle scholar articles
  • Prem Prakash Jayaraman Department of Computing Technologies, Swinburne University of Technology, Hawthorn, Victoria, Australia PubMed articlesGoogle scholar articles
  • Alison H Trainer Sir Peter MacCallum Department of Oncology, The University of Melbourne, Melbourne, Victoria, AustraliaParkville Familial Cancer Centre, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia PubMed articlesGoogle scholar articles
  1. Correspondence to Dr Alison H Trainer; Alison.Trainer{at}Petermac.org
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Citation

Best S, Al Mahmud A, Tyagi S, et al
Development of a person-centred digital platform for the long-term support of people living with an adult-onset genetic disease predisposition: a mixed-methods study protocol
BMJ Open 2023;13:e071492. doi: 10.1136/bmjopen-2022-071492

Publication history

  • Received January 10, 2023
  • Accepted July 14, 2023
  • First published July 30, 2023.
Online issue publication 
July 30, 2023
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  • Supplementary Data

    This web only file has been produced by the BMJ Publishing Group from an electronic file supplied by the author(s) and has not been edited for content.

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© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.