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Respiratory medicine
Protocol
Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol
  1. Carita Bramhill1,
  2. Donna Langan2,
  3. Helen Mulryan2,
  4. Jessica Eustace-Cook3,
  5. Anne-Marie Russell4,
  6. Anne-Marie Brady1
  1. 1Trinity Centre for Practice and Healthcare Innovation, School of Nursing & Midwifery, Trinity College Dublin, Dublin, Ireland
  2. 2Department of Respiratory, Galway University Hospital, Galway, Ireland
  3. 3TCD Library, Trinity College Dublin, Dublin, Ireland
  4. 4Exeter Respiratory Innovations Centre, University of Exeter, Exeter, UK
  1. Correspondence to Carita Bramhill; bramhilc{at}tcd.ie

Abstract

Introduction Interstitial lung diseases consist of a range of lung disorders, the most prevalent being idiopathic pulmonary fibrosis (IPF). IPF is a chronic, progressive disease, resulting in loss of lung function and potentially significant impacts on quality of life. There is an increasing need to address unmet needs in this population as there is evidence that unmet needs may impact quality of life and health outcomes. The key objective of this scoping review is to define the unmet needs of patients living with a diagnosis of IPF and to identify gaps in the literature relating to unmet needs. Findings will inform the development of services and the introduction of patient-centred clinical care guidelines for IPF.

Methods and analysis This scoping review is guided by the methodological framework for conducting scoping reviews developed by the Joanna Briggs Institute. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist is used for guidance. The following databases will be searched: CINAHL, MEDLINE, PsycINFO, Web of Science, Embase and ASSIA and include a comprehensive grey literature search. The review will report on adult patients >18 with a diagnosis of IPF or pulmonary fibrosis and be limited to publications from 2011 onwards, with no language restrictions applied. Two independent reviewers will screen articles in consecutive stages for relevance against the inclusion and exclusion criteria. Data will be extracted using a predefined data extraction form and analysed using descriptive and thematic analysis. Findings will be presented in tabular form, coupled with a narrative summary of the evidence.

Ethics and dissemination Ethics approval is not required for this scoping review protocol. We will disseminate our findings using traditional approaches that include open access peer-reviewed publications and scientific presentations.

  • interstitial lung disease
  • epidemiology
  • respiratory medicine (see thoracic medicine)
  • adult thoracic medicine
http://creativecommons.org/licenses/by-nc/4.0/

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

https://doi.org/10.1136/bmjopen-2022-070513

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    Footnotes

    • Twitter @CaritaBramhill, @twh1976, @anmari_russell

    • Contributors CB and A-MB led the conceptualisation, design and development of this study. DL and HM assisted with the scoping review approach. CB, A-MB and A-MR were involved in developing the review questions. CB drafted the protocol. CB and JE-C developed the search strategy with input from A-MB. A-MR provided feedback from a clinical perspective. All authors reviewed and approved the final version of the manuscript.

    • Funding This work was supported by the Irish Research Council (Grant number: GOIPG/2022/56).

    • Competing interests None declared.

    • Patient and public involvement Patients and/or the public were involved in the design, or conduct, or reporting, or dissemination plans of this research. Refer to the Methods section for further details.

    • Provenance and peer review Not commissioned; externally peer reviewed.

    • Supplemental material This content has been supplied by the author(s). It has not been vetted by BMJ Publishing Group Limited (BMJ) and may not have been peer-reviewed. Any opinions or recommendations discussed are solely those of the author(s) and are not endorsed by BMJ. BMJ disclaims all liability and responsibility arising from any reliance placed on the content. Where the content includes any translated material, BMJ does not warrant the accuracy and reliability of the translations (including but not limited to local regulations, clinical guidelines, terminology, drug names and drug dosages), and is not responsible for any error and/or omissions arising from translation and adaptation or otherwise.