Article Text

Original research
Self-Management Analysis in Chronic Conditions (SMACC) checklist: an international consensus-based tool to develop, compare and evaluate self-management support programmes
  1. Timothy Moreels1,2,
  2. Ellen Cruyt1,
  3. Stijn De Baets1,3,
  4. Lore Andries1,
  5. Magelien Arts-Tielemans4,
  6. Maria Rodriguez-Bailon5,
  7. Aileen Bergström6,
  8. Kyara Boete1,
  9. Iris Bormans1,
  10. Ursula Costa7,
  11. Hanne Declercq1,
  12. Sari Dekelver1,
  13. Virginie Dekyvere1,
  14. Eva Delooz1,
  15. Cynthia Engels8,
  16. Sam Helderweirt1,
  17. Mike Jarrey9,
  18. Anneleen Lenaerts1,
  19. Anneleen Leyman1,
  20. Kee Hean Lim10,
  21. Louise Meynen1,
  22. Ton Satink4,
  23. Freya Schoenmakers1,
  24. Daniela Senn11,
  25. Lise Slembrouck1,
  26. Emma Van Meensel1,
  27. Dani Vangenechten1,
  28. Bram Van Paepeghem1,
  29. Patricia De Vriendt3,9,
  30. Dominique Van de Velde1
  1. 1Department of Rehabilitation Sciences, Ghent University, Gent, Belgium
  2. 2Department of Nephrology, Ghent University Hospital, Ghent, Belgium
  3. 3Department of Gerontology and Frailty in Ageing Research Group, Vrije Universiteit Brussel, Brussel, Belgium
  4. 4Department of Occupational Therapy, HAN University of Applied Science, Nijmegen, The Netherlands
  5. 5Physiotherapy (Occupational Therapy), Universidad de Malaga, Malaga, Spain
  6. 6Karolinska Institutet Department of Neurobiology Care Sciences and Society, Stockholm, Sweden
  7. 7Occupational Science, Health University of Applied Science Tyrol, Tyrol, Austria
  8. 8Clinical Epidemiology and Ageing Unit, Université Paris Est Créteil (UPEC), Créteil, France
  9. 9Occupational Therapy, Artevelde University College, Ghent, Belgium
  10. 10Department of Health Sciences, St Mary's Hospital Medical School, London, UK
  11. 11Occupational Therapy, ZHAW School of Health Professions, Winterthur, Switzerland
  1. Correspondence to Timothy Moreels; Timothy.moreels{at}ugent.be

Abstract

Objectives The Self-Management Analysis in Chronic Conditions (SMACC) checklist was developed as a guidance tool to support the development, comparison and evaluation of self-management support programmes for persons with a chronic condition. The checklist was based on a previously performed concept analysis of self-management. The aim of this study was to validate its content using an international Delphi study and to deliver a final version.

Design A two-round Delphi study was conducted between October 2022 and January 2023. Using the researchers’ networks, professionals with research or clinical expertise in self-management support and chronic conditions were recruited via online purposive snowball sampling. Participants were asked to score each item of the checklist (16 items total) on 3 content validity indicators: (1) clarity and comprehensibility, (2) relevance and importance and (3) degree of alignment with the overall goal of the checklist to promote adequate and comprehensive self-management support programmes. A consensus threshold of 75% agreement was used. The participants were also asked general questions about the checklist as a whole and were asked to provide feedback considering its refinement.

Results Fifty-four professionals with an average 14.5 years of experience participated in round 1, 48 with an average 12.5 years of experience participated in round 2. The majority of professionals were from Western Europe. For the majority of items consensus was reached after round 1. In round 2, 3 of the 4 remaining items reached consensus, 1 last item was retained based on highly recurring feedback.

Conclusions The SMACC checklist was considered a valid and comprehensive tool to aid the development, evaluation and comparison of self-management support programmes. It was acknowledged as a useful instrument to supplement existing frameworks and was seen as feasible to implement in both research and clinical settings. Further validation in the field, with input from patients and peer experts, will be valuable.

  • quality of life
  • self care
  • primary health care

Data availability statement

All data relevant to the study are included in the article or uploaded as supplementary information.

http://creativecommons.org/licenses/by-nc/4.0/

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

Statistics from Altmetric.com

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.

Data availability statement

All data relevant to the study are included in the article or uploaded as supplementary information.

View Full Text

Supplementary materials

  • Supplementary Data

    This web only file has been produced by the BMJ Publishing Group from an electronic file supplied by the author(s) and has not been edited for content.

Footnotes

  • Contributors TM led the writing of the final manuscript. TM, EC, DVdV, LA, KB, IB, HD, SD, VD, ED, SH, ALen, LM, FS, LS, EVM and BVP analysed and interpreted the data. TM, LA, KB, IB, HD, SD, VD, ED, SH, ALen, LM, FS, LS, EVM and BVP had substantial contribution in data acquisition, analysis and interpretation. TM, EC, DVdV and PDV had substantial contribution in the study conception and design, data analysis and interpretation. LA, KB, IB, HD, SD, VD, ED, SH, ALen, LM, FS, LS, EVM and BVP provided a first draft based on the outline by TM and DVdV. TM, DVdV, PDV, SDB, MA-T, MR-B, AB, UC, CE, MJ, KHL, TS and DS initially contacted clinical and research experts in their networks and respective countries. ALey and DV designed an initial version of the checklist. All authors revised and approved the final version of the manuscript. TM and DVdV are the guarantors of the study.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Patient and public involvement We did not explicitly include public or patient involvement, beyond the recruited healthcare professionals, in the design and development of the checklist as it was based on a previously conducted concept analysis of the literature. With this study, our primary focus was on the expertise and objectivity of healthcare providers and researchers, building on the evidence-based theoretical foundations identified in the concept analysis and further incorporating expert knowledge before incorporating the perspective of patients. Further validation with patients will be required to ensure the ultimate reliability and applicability of the checklist. The included version of the checklist will be published on a publicly accessible website of Ghent University. Additionally, it will be disseminated to non-research-specific settings (eg, primary care settings) where it will undergo further validation in the field.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Supplemental material This content has been supplied by the author(s). It has not been vetted by BMJ Publishing Group Limited (BMJ) and may not have been peer-reviewed. Any opinions or recommendations discussed are solely those of the author(s) and are not endorsed by BMJ. BMJ disclaims all liability and responsibility arising from any reliance placed on the content. Where the content includes any translated material, BMJ does not warrant the accuracy and reliability of the translations (including but not limited to local regulations, clinical guidelines, terminology, drug names and drug dosages), and is not responsible for any error and/or omissions arising from translation and adaptation or otherwise.