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  • Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study

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Palliative care
Protocol
Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study

Authors

  • Berivan Yildiz Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands PubMed articlesGoogle scholar articles
  • Simon Allan Arohanui Hospice, Palmerston North, New Zealand PubMed articlesGoogle scholar articles
  • Misa Bakan Research Department, University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia PubMed articlesGoogle scholar articles
  • Pilar Barnestein-Fonseca CUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Malaga, SpainGroup C08: Pharma Economy: Clinical and Economic Evaluation of Medication and Palliative Care, Ibima Institute, Malaga, Spain PubMed articlesGoogle scholar articles
  • Michael Berger Department of Health Economics, Center for Public Health, Medical University of Vienna, Wien, Austria PubMed articlesGoogle scholar articles
  • Mark Boughey Department of Palliative Care, St Vincent's Hospital Melbourne, Fitzroy, Victoria, Australia PubMed articlesGoogle scholar articles
  • Andri Christen University Center for Palliative Care, Inselspital University Hospital Bern, University of Bern, Bern, Switzerland PubMed articlesGoogle scholar articles
  • Gustavo G De Simone Research Network RED-InPal, Institute Pallium Latinoamérica, Buenos Aires, Argentina PubMed articlesGoogle scholar articles
  • Martina Egloff University Center for Palliative Care, Inselspital University Hospital Bern, University of Bern, Bern, Switzerland PubMed articlesGoogle scholar articles
  • John Ellershaw Palliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK PubMed articlesGoogle scholar articles
  • Eline E C M Elsten Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The NetherlandsDepartment of Medical Oncology, Erasmus MC Cancer Institute, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands PubMed articlesGoogle scholar articles
  • Steffen Eychmüller University Center for Palliative Care, Inselspital University Hospital Bern, University of Bern, Bern, Switzerland PubMed articlesGoogle scholar articles
  • Claudia Fischer Department of Health Economics, Center for Public Health, Medical University of Vienna, Wien, Austria PubMed articlesGoogle scholar articles
  • Carl Johan Fürst Institute for Palliative Care at Lund University and Region Skåne, Lund University, Lund, SwedenDivision of Oncology and Pathology, Department of Clinical Sciences, Lund University, Lund, Sweden PubMed articlesGoogle scholar articles
  • Eric C T Geijteman Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The NetherlandsDepartment of Medical Oncology, Erasmus MC Cancer Institute, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands PubMed articlesGoogle scholar articles
  • Gabriel Goldraij Internal Medicine/Palliative Care Program, Hospital Privado Universitario de Córdoba, Cordoba, Argentina PubMed articlesGoogle scholar articles
  • Anne Goossensen Informal Care and Care Ethics, University of Humanistic Studies, Utrecht, The Netherlands PubMed articlesGoogle scholar articles
  • Svandis Iris Halfdanardottir Palliative Care Unit, Landspitali - National University Hospital, Reykjavik, Iceland PubMed articlesGoogle scholar articles
  • Dagny Faksvåg Haugen Regional Centre of Excellence for Palliative Care, Haukeland University Hospital, Western Norway, Bergen, NorwayDepartment of Clinical Medicine K1, University of Bergen, Bergen, Norway PubMed articlesGoogle scholar articles
  • Christel Hedman Institute for Palliative Care at Lund University and Region Skåne, Lund University, Lund, SwedenDivision of Oncology and Pathology, Department of Clinical Sciences, Lund University, Lund, SwedenResearch Department, Stiftelsen Stockholms Sjukhem, Stockholm, Sweden PubMed articlesGoogle scholar articles
  • Tanja Hoppe Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany PubMed articlesGoogle scholar articles
  • Rosemary Hughes Palliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK PubMed articlesGoogle scholar articles
  • Grethe Skorpen Iversen Regional Centre of Excellence for Palliative Care, Haukeland University Hospital, Western Norway, Bergen, Norway PubMed articlesGoogle scholar articles
  • Melanie Joshi Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany PubMed articlesGoogle scholar articles
  • Hana Kodba-Ceh Research Department, University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia PubMed articlesGoogle scholar articles
  • Ida J Korfage Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands PubMed articlesGoogle scholar articles
  • Urska Lunder Research Department, University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia PubMed articlesGoogle scholar articles
  • Nora Lüthi University Center for Palliative Care, Inselspital University Hospital Bern, University of Bern, Bern, Switzerland PubMed articlesGoogle scholar articles
  • Maria Luisa Martín-Roselló CUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Malaga, SpainGroup CA15: Palliative Care, IBIMA Institute, Malaga, Spain PubMed articlesGoogle scholar articles
  • Stephen Mason Palliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK PubMed articlesGoogle scholar articles
  • Tamsin McGlinchey Palliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK PubMed articlesGoogle scholar articles
  • Silvi Montilla Institute of Medical Research A. Lanari, University of Buenos Aires, Buenos Aires, Argentina PubMed articlesGoogle scholar articles
  • Birgit H Rasmussen Institute for Palliative Care at Lund University and Region Skåne, Lund University, Lund, Sweden PubMed articlesGoogle scholar articles
  • Inmaculada Ruiz-Torreras CUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Malaga, SpainGroup CA15: Palliative Care, IBIMA Institute, Malaga, Spain PubMed articlesGoogle scholar articles
  • Maria E C Schelin Institute for Palliative Care at Lund University and Region Skåne, Lund University, Lund, SwedenDivision of Oncology and Pathology, Department of Clinical Sciences, Lund University, Lund, Sweden PubMed articlesGoogle scholar articles
  • Katrin Ruth Sigurdardottir Regional Centre of Excellence for Palliative Care, Haukeland University Hospital, Western Norway, Bergen, NorwaySpecialist Palliative Care Team, Department of Anaesthesia and Surgical Services, Haukeland University Hospital, Bergen, Norway PubMed articlesGoogle scholar articles
  • Valgerdur Sigurdardottir Palliative Care Unit, Landspitali - National University Hospital, Reykjavik, Iceland PubMed articlesGoogle scholar articles
  • Judit Simon Department of Health Economics, Center for Public Health, Medical University of Vienna, Wien, Austria PubMed articlesGoogle scholar articles
  • Ruthmarijke Smeding Palliative Care Unit, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK PubMed articlesGoogle scholar articles
  • Kjersti Solvåg Regional Centre of Excellence for Palliative Care, Haukeland University Hospital, Western Norway, Bergen, Norway PubMed articlesGoogle scholar articles
  • Julia Strupp Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany PubMed articlesGoogle scholar articles
  • Vilma Tripodoro Research Network RED-InPal, Institute Pallium Latinoamérica, Buenos Aires, ArgentinaInstitute of Medical Research A. Lanari, University of Buenos Aires, Buenos Aires, Argentina PubMed articlesGoogle scholar articles
  • Hugo M van der Kuy Department of Clinical Pharmacy, Erasmus MC, University Medical Center, Rotterdam, The Netherlands PubMed articlesGoogle scholar articles
  • Carin C D van der Rijt Department of Medical Oncology, Erasmus MC Cancer Institute, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands PubMed articlesGoogle scholar articles
  • Lia van Zuylen Department of Medical Oncology, Amsterdam University Medical Center, Amsterdam, The Netherlands PubMed articlesGoogle scholar articles
  • Verónica I Veloso Institute of Medical Research A. Lanari, University of Buenos Aires, Buenos Aires, Argentina PubMed articlesGoogle scholar articles
  • Eva Vibora-Martin CUDECA Institute for Training and Research in Palliative Care, CUDECA Hospice Foundation, Malaga, Spain PubMed articlesGoogle scholar articles
  • Raymond Voltz Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, GermanyCenter for Integrated Oncology Aachen Bonn Cologne Dusseldorf (CIO ABCD), Faculty of Medicine and University Hospital, University of Cologne, Cologne, GermanyClinical Trials Center (ZKS), Faculty of Medicine and University Hospital, University of Cologne, Cologne, GermanyCenter for Health Services Research (ZVFK), Faculty of Medicine and University Hospital, Cologne, Germany PubMed articlesGoogle scholar articles
  • Sofia C Zambrano University Center for Palliative Care, Inselspital University Hospital Bern, University of Bern, Bern, SwitzerlandInstitute for Social and Preventive Medicine (ISPM), University of Bern, Bern, Switzerland PubMed articlesGoogle scholar articles
  • Agnes van der Heide Department of Public Health, Erasmus MC, University Medical Center Rotterdam, Rotterdam, The Netherlands PubMed articlesGoogle scholar articles
  1. Correspondence to Berivan Yildiz; b.yildiz{at}erasmusmc.nl
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Citation

Yildiz B, Allan S, Bakan M, et al
Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study
BMJ Open 2022;12:e057229. doi: 10.1136/bmjopen-2021-057229

Publication history

  • Received September 8, 2021
  • Accepted July 18, 2022
  • First published August 5, 2022.
Online issue publication 
March 30, 2024
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© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.