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Health services research
Original research
How to co-design a health literacy-informed intervention based on a needs assessment study in chronic obstructive pulmonary disease
  1. Christine Råheim Borge1,2,
  2. Marie Hamilton Larsen3,
  3. Richard H Osborne4,
  4. Eivind Engebretsen1,
  5. Marit Helen Andersen1,5,
  6. Ingrid Asbjørnsen Holter2,
  7. Astrid K Wahl1
  1. 1Department of Interdisciplinary Health Sciences, University of Oslo Faculty of Medicine, Oslo, Norway
  2. 2Research Department, Lovisenberg Diakonale Hospital, Oslo, Norway
  3. 3Department of Master courses, Lovisenberg Diaconal University College, Oslo, Norway
  4. 4Faculty of Health, Arts and Design, Swinburne University of Technology, Melbourne, Victoria, Australia
  5. 5Division of Cancer Medicine, Surgery and Transplantation, Oslo Universitetssykehus, Oslo, Norway
  1. Correspondence to Ph.d. Christine Råheim Borge; c.r.borge{at}medisin.uio.no

Abstract

Objective To develop a co-designed health literacy (HL)-informed intervention for people with chronic obstructive pulmonary disease (COPD) that enables them to find, understand, remember, use and communicate the health information needed to promote and maintain good health.

Design This study used a co-design approach informed by the programme logic of the Ophelia (Optimising Health Literacy and Access) process. The co-design included workshops where possible solutions for an HL-informed intervention were discussed based on an HL needs assessment study.

Settings Five workshops were performed in a local community setting in the specialist and municipality healthcare services in Oslo, Norway.

Participants People with COPD, multidisciplinary healthcare professionals (HCPs) from the municipality and specialist healthcare services, and researchers (n=19) participated in the workshops. The co-designed HL-informed intervention was based on seven focus groups with people with COPD (n=14) and HCPs (n=21), and a cross-sectional study of people with COPD using the Health Literacy Questionnaire (n=69).

Results The workshop co-design process identified 45 action points and 51 description points for possible intervention solutions to meet the HL needs of people with COPD. The final recommendation for an HL-informed intervention focused on tailored follow-up after hospitalisation, which uses motivational interviewing techniques, is based on the individual’s HL, self-management and quality of life needs and is implemented in cooperation with HCPs in both the specialist and municipality healthcare services.

Conclusion During the codesign process, the workshop group generated several ideas for how to help patients find, understand, remember, use and communicate health information in order to promote and maintain good health. People with COPD need tailored follow-up based on their individual HL needs by HCPs that have knowledge of COPD and are able to motivate them for self-management tasks and help them to improve their quality of life (QOL) and decrease hospitalisation.

  • Information management
  • HEALTH SERVICES ADMINISTRATION & MANAGEMENT
  • Health & safety
  • Organisation of health services
  • Quality in health care
  • RESPIRATORY MEDICINE (see Thoracic Medicine)

Data availability statement

No data are available. Norwegian regional ethical guidelines do not give permission to share data from research if they are not anonymous.

http://creativecommons.org/licenses/by-nc/4.0/

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

https://doi.org/10.1136/bmjopen-2022-063022

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    Data availability statement

    No data are available. Norwegian regional ethical guidelines do not give permission to share data from research if they are not anonymous.

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    Footnotes

    • Twitter @richardosborne4, @eivinden

    • Contributors CRB was a guarantor and responsible for the performance of the entire study including being the leader of the workshops and steering group, conducting the analyses and drafting this paper. AW was coresponsible with a contribution to all parts. MHL and IAH participated in all the workshop meetings. All authors (ie, CRB, MHL, RO, MHA, EE, IAH and AW) were part of the analyses and writing the final version of this paper. All authors agreed on the revised document.

    • Funding This study has been supported by The Foundation Dam Feedback Study to the project 'A key to health in COPD' (link: Nøkkelen til helse for personer med KOLS-Stiftelsen Dam, project number 2017/FO147263. RHO was funded in part through a National Health and Medical Research Council of Australia Principal Research Fellowship (APP1155125).

    • Competing interests None declared.

    • Patient and public involvement Patients and/or the public were involved in the design, conduct, reporting or dissemination plans of this research. Refer to the Methods section for further details.

    • Provenance and peer review Not commissioned; externally peer reviewed.