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  • Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research

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Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research

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Cite this article as:
de Freitas C, Amorim M, Machado H, et al
Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research
BMJ Open 2021;11:e044289. doi: 10.1136/bmjopen-2020-044289