Objective To devise strategies to amend lay and practitioner atopic eczema mindlines ‘collectively reinforced, internalised tacit guidelines’, to improve consultation experiences and self-management practices in primary care.
Design Co-creation workshops informed by the Co:Create Coproduction Matrix.
Setting Conference centre in central England and via remote communication.
Participants Lay people with, and parents of children with, atopic eczema, practitioners, a researcher and a facilitator (n=22).
Results Eczema mindline amendment needs to address people and parents of children with the condition, practitioners and wider society in parallel. For lay people trust and ‘realness’ of amendment activity was vital and practitioners wanted practical, locally relevant, hints and tips, tailored, ‘no faff’ approaches. To improve consultation experiences and self-management practices, five key, consistent, evidence-based messages need to be instilled into eczema mindlines: (1) eczema is more than just dry skin, (2) eczema does not just go away, (3) moisturisers are for every day, (4) steroid creams are okay when you need them and (5) you know your child’s eczema best.
Conclusion This co-creation study provides original insights into what eczema knowledge should be mobilised, who needs to have this knowledge, how this should be achieved to amend existing mindlines to improve consultation experiences and self-management practices in primary care.
The remaining challenge is to refine, implement and evaluate the effectiveness of strategies developed to instil the five core messages and erase outdated or inaccurate information.
- primary care
- qualitative research
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Contributors FC conceived and designed the study. FC, TA and CL made substantial contributions to the acquisition, analysis and interpretation of data. FC wrote the draft manuscript. TA and CL revised the draft critically for important intellectual content. FC, TA and CL gave final approval of the version published. FC, TA and CL agreed to be accountable for all aspects of the work in ensuring that questions related to the accuracy or integrity of any part of the work are appropriately investigated and resolved.
Funding FC is funded by a National Institute for Health Research Knowledge Mobilisation Research Fellowship (KMRF-2015-04-004).
Disclaimer This article presents independent research funded by the National Institute for Health Research (NIHR). The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care.
Competing interests None declared.
Patient consent for publication Not required.
Ethics approval The study was approved by the Birmingham City University, Health, Education and Life Sciences Faculty Academic Ethics Committee.
Provenance and peer review Not commissioned; externally peer reviewed.
Data availability statement Data are available upon reasonable request. The datasets generated and/or analysed during the current study are not publicly available as they are not designed to be reanalysed by others but are available from the corresponding author on reasonable request.
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