Article Text

Download PDFPDF

Original research
Health profile of residents of retirement villages in Auckland, New Zealand: findings from a cross-sectional survey with health assessment
  1. Joanna B Broad1,
  2. Zhenqiang Wu1,
  3. Katherine Bloomfield1,2,
  4. Joanna Hikaka3,
  5. Dale Bramley4,
  6. Michal Boyd2,5,
  7. Annie Tatton2,
  8. Cheryl Calvert6,
  9. Kathy Peri5,
  10. Ann-Marie Higgins1,
  11. Martin J Connolly1,2
  1. 1Department of Geriatric Medicine, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand
  2. 2Health of Older People, Waitematā District Health Board, Auckland, New Zealand
  3. 3Department of Pharmacy, University of Auckland, Auckland, New Zealand
  4. 4Executive Leadership Team, Waitematā District Health Board, Auckland, Auckland, New Zealand
  5. 5School of Nursing, University of Auckland, Auckland, New Zealand
  6. 6Auckland District Health Board, Auckland, New Zealand
  1. Correspondence to Dr Joanna B Broad; j.broad{at}auckland.ac.nz

Abstract

Objectives Retirement villages (RV) have expanded rapidly, now housing perhaps one in eight people aged 75+ years in New Zealand. Health service initiatives might better support residents and offer cost advantages, but little is known of resident demographics, health status or needs. This study describes village residents—their demographics, socio-behavioural and health status—noting differences between participants who volunteered and those who were sampled.

Design Cross-sectional study of village residents. The cohort formed will also be used for a longitudinal study and a randomised controlled trial. Village managers (sometimes after consulting residents) decided if representative sampling could be undertaken in each village. Where sampling was not approved, volunteers were sought.

Setting 33 RV were included from a total of 65 villages in Auckland, New Zealand.

Participants Residents (n=578) were recruited either by sampling (n=217) or as volunteers (n=361) during 2016–2018. Each completed a survey and an International Resident Assessment Instrument (interRAI) health needs assessment with a gerontology nurse specialist.

Results Median age of residents was 82 years, 158 (27%) were men; 61% lived alone. Downsizing (77%), less stress (63%) and access to healthcare assistance (61%) were most common reasons for entry. During the 2 weeks prior to survey, 34% received home supports and 10% personal care. Hypertension, heart disease, arthritis and pain were reported by over 40%. Most common unmet needs related to managing cardiorespiratory symptoms (50%) and pain (48%). Volunteers and sampled residents differed significantly, mainly in socio-behavioural respects.

Conclusions Common conditions including hypertension, arthritis and atrial fibrillation, are recorded in interRAI as text, and thus overlooked in interRAI reports. Levels of unmet need indicate opportunities to improve health services to better manage chronic conditions. Healthcare service providers and village operators could cooperate to design and test service initiatives that better meet residents’ needs and offer cost benefits.

Trial registration number ACTRN12616000685415.

  • geriatric medicine
  • epidemiology
  • organisation of health services
  • preventive medicine
  • primary care
http://creativecommons.org/licenses/by-nc/4.0/

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

View Full Text

Statistics from Altmetric.com

Strengths and limitations of this study

  • A customised survey and health needs assessments were conducted by gerontology nurse specialists (GNS) experienced using International Resident Assessment Instrument tools and in assessing the health and related needs of older people.

  • Where villages did not permit random selection to obtain a representative sample, volunteers responded to village-wide invitations to participate.

  • 578 residents (361 sampled and 217 volunteers) were recruited from 33 retirement villages in a defined geographical area, the largest known survey of village residents in New Zealand (NZ).

  • If the GNS had any question about a resident’s cognitive capacity to consent, participation was precluded, in compliance with NZ regulations; results will therefore overstate measures of capacity slightly.

  • The study establishes a cohort for a longitudinal cohort study of healthcare utilisation, and also a randomised controlled trial of a health service intervention.

Introduction

Major changes in housing in New Zealand (NZ) in recent years have included widespread expansion of retirement villages (RV), known elsewhere as continuing care retirement communities. Until the 1980s, housing in NZ was almost entirely detached bungalows. By 2017, RV housed an estimated 13% of the total NZ population aged over 75 years, 16% in the Auckland region.1 Continued growth in the sector has pleased share market investors, developers and village operators, and most, though not all, of their residents.2 3 RV vary internationally4; to clarify their operations in NZ, supplementary materials are available in online supplemental file 1.

In general, studies have shown that residents and their families are attracted to the purposefully designed buildings, social and lifestyle opportunities, physical activities and secure environment.5 6 Although health tends to improve following relocation to a village7 8 new and potential residents anticipate support will be available should their health or function decline.6 In preparatory work for this study, village residents’ health-related needs were intermediate between those of community dwellers and residents in long-term residential care facilities.9 Given their greater dependency versus those living in private dwellings, they represent a potentially more vulnerable group. However, little is known about the social/health/dependency characteristics and needs of NZ’s village residents or whether support is adequate.

The information that does exist about residents is predominantly from three sources: the industry’s own annual reports,1 10–13 the Retirement Commissioner’s one-off survey,6 a few qualitative studies14 15 and occasional surveys of one/few villages.16 Neither the national census nor national health datasets can report demographic or health characteristics of those living in RV. Unlike long-term care facilities, RV are not seen as part of the health system and there is no involvement of health authorities in their operations except where residents receive home-based supports in the same way as they might if living independently. Consequently, no official statistics characterise the demographics, health or unmet health needs of this large group of older people.

Previous studies showed that NZ’s RV residents were older, more educated, have more financial resources but significantly greater dependency than those in private dwellings.9 17 18 Given their greater dependency, they represent a potentially more vulnerable group in terms of transition to long-term care facilities and to acute hospitalisation/death. Improved understandings of the medical acuity of residents could inform health planning to improve quality of life, facilitate independence and reduce service demand. This report describes the social, health status and functional needs of current residents to meet that knowledge gap. It also notes differences between survey participants who volunteered and those who were sampled. The survey is the first part of a larger project with additional objectives: to include the surveyed residents as a cohort in order to describe ongoing health service use and outcomes and identify related factors, and, in residents selected with high needs, to test the effect of a multidisciplinary intervention on health outcomes in a randomised controlled trial (RCT).19 Results of these latter two parts will be reported separately.

Methods

Eligibility and recruitment

Of all 65 villages in two district health board regions (Auckland and Waitematā), 53 were approached. We aimed to recruit a representative sample of 572 residents from all villages, sufficient to power the cohort study and RCT.19 The original plan was to enrol residents from a random sample of units in each village. When this proved impracticable, recruitment methods were extended to include volunteers. Two distinct recruitment methods were thus employed:

  • Sampled gerontology nurse specialist (GNS) researchers approached randomly selected units (or, in villages with under 60 units, all units) by letter and door-knock/phone; all occupants in selected units were invited.

  • Volunteers all residents were invited to participate via newsletters, posters and at resident meetings, but were not door-knocked/phoned.

Sample size for the survey (phase 1) was governed by the number needed for the RCT which followed this study and is not reported here. For the precision of survey estimates, if the prevalence of a characteristic of interest is around 50% and representative sampling been achieved, the sample (n=578) would provide at least 4.5% precision (50%±4.5%) at a 95% confidence level.

Any resident who might have diminished capacity to consent was excluded as required under NZ’s Code of Health and Disability Services Consumers’ Rights.20 A low threshold for exclusion was applied: Addenbrookes Cognitive Examination Revised score under 65, or that in the opinion of our research GNSs, general practitioner or retirement village manager, the resident might lack capacity, meant the resident was excluded from participation.

Patient and public involvement

Prior to commencement, pilot projects had explored the design and content of the survey with residents of other villages.9 Village managers and in most villages, interested residents, had an opportunity to discuss the study with the GNSs prior to undertaking to participate. A short summary of very preliminary findings, with acknowledgement and thanks for their participation, has been distributed to all participants. A second round of contact with the residents involved with the trial is currently underway. At study end we will provide a report for participating villages, and will invite them to hold meetings for their residents at which study investigators will explain study findings and facilitate discussion about their implications.

Instruments

Each participant completed a custom-designed resident survey, facilitated by a project GNS. Topics covered reasons for moving into the village, measures of satisfaction and social function. The survey was followed by a health needs assessment of health status, function and dependency. For this assessment we used the internationally recognised interRAI (International Resident Assessment Instrument) suite of tools,21 validated to comprehensively assess multiple health, functional and social domains including social and physical health, functional ability, existing supports, diagnoses/conditions, treatment and unmet needs.

In part, interRAI was chosen because in NZ an interRAI needs assessment is required when older people seek government financial assistance for support services.22 We selected the interRAI Community Health Assessment (CHA) instrument because, for those who are well and independent, it includes core items only; when screening questions suggest poorer function one of four supplements is triggered to obtain more detailed information, for example, if greater dependency seems apparent, the Functional Supplement is triggered.23 Where a prior interRAI assessment—either HC (Home Care) or LTCF (Long Term Care Facilities) instrument—had been undertaken within the previous 6 months and no major medical or social change had occurred, the prior assessment was used. Prior interRAI assessments are carried forward to the next assessment unless revised by the assessor.

Validated interRAI scales, for example for pain, deaf/blind, depression, activities of daily living (ADLs) and instrumental activities of daily living (IADLs), indicate particular functional difficulties or loss.24 The ADL Self-Performance Hierarchy scale combines four items reported over a 3-day period: personal hygiene, toilet use, locomotion and eating. The IADL Capacity Hierarchy Scale uses eight items: ordinary housework, shopping, using stairs, meal preparation, transportation, managing finances, managing medications and phone use. Seventeen interRAI Clinical Assessment Protocols (CAPs) indicate unmet needs that impact on quality of life and that would normally be addressed in a care plan.25

Medical diagnoses and conditions are captured systematically in interRAI in three ways: (1) a pre-specified list of 14 diseases asked of all respondents, (2) health conditions and symptoms documented with specific interRAI questions for example, acid reflux and (3) other specific diagnoses (eg, Parkinson’s disease, multiple sclerosis) by tick box conditional on the Functional Supplement being triggered. Additional diagnoses are recorded as free-text if considered relevant to current ADL status. For this report, we combined the systematically collected diagnoses with free text searches. Acute or temporary diagnoses (eg, pneumonia, fracture) and those effectively covered by CAPs (eg, pain, mood, incontinence) are reported as such, that is, not considered as diagnoses/conditions.

Sociodemographic data, including age, sex and marital status, were collected systematically including ethnic identity. Ethnicity is classified by priority ordering into Māori, Pacific people, Asian, European and other, under standard NZ reporting (level 1) provisions except that we further divide European into NZ European and Other European.

Data acquisition

The resident survey was administered using the online platform Qualtrics (XM Institute, Utah) usually with the GNS. InterRAI assessments were also conducted online with the GNS, except that some were recorded on paper copy and later entered into the interRAI online system. interRAI data were supplied to the research team by Central Region TAS (Technical Advisory Services, Wellington) following an approval and anonymisation process. Both datasets contain the National Highway Institute (NHI) unique patient identifier. We ascribed each participant a unique study ID, sent a file containing the study ID and the NHI number to TAS enabling interRAI data to be extracted. Data from the survey and interRAI were then merged using the study ID.

Analyses

This report presents descriptive results of the survey and health needs assessment, comparing results for volunteers and sampled residents. These comparisons used t-tests, Kruskal-Wallis and χ2 tests of proportion, and where numbers were small, Fisher’s exact tests. SAS V.9.4 software (SAS Institute) was used for analysis. Statistically significant differences were assumed when p<0.01 in two-tailed tests. When less than 5% (n<29) of the data were missing, we used single imputation methods (modes for categorical variables and medians for continuous variables) to avoid ‘losing’ residents from analyses (online supplemental file 2).

Results

Between June 2016 and August 2018, 578 residents were surveyed (361 volunteers from 296 units in 27 villages, and 217 residents from 190 sampled units in 11 villages; in 6 villages, both recruitment methods were used). Of the units that were randomly sampled, the response rate was 35%. On average, one unit in five had two occupants, thus the mean occupancy was 1.2 residents. Twelve residents (nine sampled, three volunteer) were excluded because they were regarded as lacking capacity to give informed consent.

The interRAI CHA was used for 565 residents (98%); 2% used an interRAI HC completed within the previous 6 months. Of all residents surveyed, 31% had an interRAI needs assessment some time prior to entry to this study. This closely matches the 29% who said they recalled being previously assessed by someone from the hospital, district health board (or similar) for needing help with home care (eg, cleaning, shopping) or personal care (eg, dressing, showering).

Demographics

The median age at survey date was 82 years (IQR 76–87 years), with 82% aged over 75 years; 158 (27%) were men; 44% were widowed (64% over 5 years ago, 17%<2 years ago) and 42% married/partnered (table 1). Over 96% self-identified as European (411 NZ European, 147 other European), seven self-identified as Māori (1%). Most (61%) lived alone though this differed by recruitment method (69% of sampled residents, 56% of volunteers, p=0.002, table 1). Generally, residents appeared financially well supported, with 75% receiving income from both investments and National Superannuation; previously, 98% (co-)owned a home and 91% were from the Auckland area.

Table 1

Sociodemographic and behavioural characteristics

Thirteen residents (2%) in a village serviced apartment were being cared for under a government-subsidised aged related residential care contract in which the village provides 24 hours care. All others (98%) lived ‘independently’ in terms of decision-making, though some received support services. Tenure was almost entirely by a ‘licence to occupy’ agreement (99% among volunteers, 94% among sampled, p<0.001; table 1).

Entry to the village

The median length of residence was 3.4 years (IQR 1.6–7.1), with 16% entering within 12 months and a similar proportion more than 10 years previously (table 1). The most common reasons for moving to the village were downsizing/reducing home maintenance (77%), less stressed lifestyle (63%), and anticipated better access to assistance with health/care issues (61%). Volunteers were more likely to select downsizing (81% vs 71%, p=0.009) and less likely to select independence from family (39% vs 52%, p=0.003). For more than one in four residents, particular events prompted the move into the village, including severe personal illness (14%), onset of a new disability (6%) and death of a spouse/partner (5%).

Quality of life, social and lifestyle

Self-reported quality of life was high, 69% very good/excellent (table 1), while most (93%) were satisfied/very satisfied with living in the village. 95% report having a supportive family, 13% of residents had a pet, and 10% often/always felt lonely.26 Participation in social activities and contact with family was frequent, with 91% going out of the unit/apartment daily and over 81% participating in social activities in the past 3 days, but 6% reported they had no such social contact within the last 3 days.

For 43%, a faith in God or spiritual aspects of life influenced how they lived quite a lot/very much; 26% attended church often and regularly. During the previous 90 days, 29% reported major life stressors (eg, serious illness in self or family member); 10% reported declining levels of participation in social, religious, occupational or other preferred activities (table 1). Over the previous 6 months 74% had used the internet, most commonly for emailing (72%), finding events of interest (62%) and searching health information (55%).

Services and support, behaviour, medications

Demand for formal (paid) support services was clear; during the 2 weeks prior to survey, 34% received home-based care for household tasks, 10% personal cares and/or 7% nursing care (table 2). In turn, more than half currently provided care for or assisted others, 19% daily. Less than 2% smoked tobacco daily and 33% never drank alcohol, while 29% had 3+ hours of physical activity in the last 3 days (table 2).

Table 2

Health and lifestyle

Several questions inform numbers of medications. The median (IQR) number of different medications taken in the last 24 hours (prescribed or otherwise, as reported in interRAI) was 6 (4.0–8.0). The resident survey separately asked how many prescribed medications were taken ‘yesterday’—the median was 5 (3.0–7.0), with 15% taking 9 or more prescribed medications (table 2).

Most participants were active users of health services, with 9% hospitalised overnight and 94% seeing a doctor in the past 90 days. (In NZ, a doctor’s prescription is normally limited to 3 months’ supply). Over the past 12 months, some needed particular health services but did not access them; services most commonly not accessed were dental and audiology (both 4%, table 2).

Functional status, ADLs, IADLs, diagnoses and unmet needs

Scores on the various interRAI scales indicating risk were low: just 4% were assessed as borderline intact or mildly impaired on the Cognitive Performance Score (≥1) and 4% indicated as depressed on the Depression Rating Scale (DRS≥3). The Functional Supplement was triggered for 12% of residents (17% sampled, 8% of volunteers) (table 2).

Residents were assessed as mainly independent in personal hygiene (97%), walking and locomotion (97%), for dressing upper and lower body (92%) and for bathing (90%); in combination, 98% rated as independent on the ADL Hierarchy Scale. For IADL capacity, 53% reported independence in ordinary housework, and over 80% in shopping, using stairs, meal preparation, transportation, managing finances, managing medications and phone use. The IADL Capacity Hierarchy Scale24 combines these individual components: 10% needed extensive assistance (table 2).

The most common chronic medical diagnoses were hypertension (53%), any heart disease (46%), arthritis (38%), reflux disorder (36%), coronary heart disease (35%) and vision/eye disorder (32%). Multi-morbidity was common, recording a median of 4.0 (IQR 3.0–7.0) conditions; only 2% gave no current chronic conditions while 9% reported nine or more.

Unmet needs were also common; 70% triggered three or more CAPs, most commonly to manage cardiorespiratory indications (50%) and pain (48%, table 2). Figure 1 shows diagnoses with over 5% prevalence and CAPs.

Figure 1

Diagnoses and health needs. 'Any heart disease' is derived from combining all diagnoses in the figure marked with an *. CAP, clinical assessment protocol; COPD, chronic obstructive pulmonary disease; CORD, chronic obstructive respiratory disease; CVA, cerebrovasclar attack; GORD, Gastro-oesophageal reflux disease; HBP, high blood pressure; HF, heart failure; IHD, ischemic heart disease; MI, myocardial infarction; TIA, transient ischaemic attack.1

Discussion

Resident characteristics

Resident assessments provide a demographic profile of people of advanced age (median age 82 years) and mainly (73%) women. That under 4% were of Māori, Asian or Pacific ethnicity is at considerable variance to the demographic mix served by the two health board populations, where in 2018, of those aged over 75 years, 80% were European/other, 3% were Māori, 13% Asian and 3% Pacific peoples (Statistics New Zealand, unpublished data). Residents clearly form a more homogeneous group than is the older population in the region, with less ethnic diversity, greater prior home ownership and more with income sources other than NZ superannuation.6 Further study of housing choices is needed to understand the influence of cultural and personal preferences, financial capability and discrimination, and why Māori in particular seldom access these facilities.

Comparison with other populations

Several NZ or Australian populations are available for comparison. In 2009, Nielsen interviewed 173 village residents in 52 village operations across NZ. They reported to the Retirement Commission that 70% of village residents were women, and that 73% were aged 80 years or over. Almost all reported their ethnicity as European (NZ or other). Three-quarters lived alone, and three-fifths relied either solely or mostly on income from their NZ Superannuation. A third said they had no long-term conditions affecting their health, though 42% rated their health as fair or poor. Overall, 9% reported having three or more disabilities around a third had conditions affecting their sight (39%) or movement (32%).

In 2016, a survey conducted in 240 villages in South Australia conducted, 2154 residents either completed and posted questionnaires or responded online; 48% were aged over 80 years, 62% were women.27 That 57% lived alone seems similar to the 56% of the Auckland volunteers, but a higher proportion, 69%, of sampled respondents, lived alone. Self-rated health was rated as good or better by 75%, with nearly 25% rating their health as just fair or poor. In terms of assistance for daily living, 57% said they received no assistance. For those who did receive some sort of assistance, housework was by far the most common activity help was received with, followed by transport.

Nationwide annual monitoring in Australia reports that residents of about 70 000 village units were on average aged 81 years of age (though in villages established less than 20 years ago the average age was younger), with 63% women.28 Of all units, 32% were occupied by couples, thus average occupancy was 1.3 people, somewhat more that in the current Auckland study.

Comparison is also possible with all people in NZ having their needs assessed to access supports and services. Schluter and colleagues described 47 236 mainly home-dwelling people having an interRAI HC assessment between July 2012 and June 2014.22 The residents in the current Auckland study were younger than those assessed for services (33% vs 43% aged over 85 years), more likely to identify with European ethnic groups (97% vs 88%), to live alone (61% vs 47%) and less likely to self-rate their health as poor/fair (23% vs 47%). Further, 4% of village residents scored 3 or higher on the DRS indicating depression, compared with 18% of HC assessments reported in the national interRAI report for 2017–2018.29 It is clear that village residents’ health overall is better than those with an interRAI record in the community (ie, non-village and non-LTCF settings), though the comparison is perhaps misleading given that national interRAI data include only those seeking assistance whereas many village residents live independently without home help or personal cares.

In comparison to those living in the community and not being needs assessed, in an NZ cohort of non-Māori in the Te Puāwaitanga O Ngā Tapuwae Kia Ora Tonu/ Life and Living in Advanced Age, a Cohort Study in New Zealand (LiLACs study), 14% rated their health as poor/fair, 5% were current smokers, with a median of five prescribed medications30; in comparison, in our village residents aged about 3 years younger, 23% rated their health as poor/fair, 1% were current smokers, with a median of five medications per resident. A study of medication-related risk factors among residents of RV in Victoria, Australia showed 95% used prescription medications, with a median of four medications per resident.31 The health and dependency of village residents are thus again seen to lie between those living independently and those receiving subsidised home-based supports and services in the community, as previously described in a small preliminary study.9

Diagnoses and unmet needs

Diagnoses most commonly identified were also similar to LiLACs, though their prevalence in our residents was much lower: hypertension (our residents 53% vs LiLACs 83%), any cardiovascular disease (46% vs 63%), coronary artery disease (35% vs 42%), eye disease (32% vs 65%).32 Lower prevalence among village residents may be because they were on average younger and/or in better health, but may also be because information sources for the LiLACs medical conditions additionally included clinical records (both primary care and hospital databases) rather than rely on self-report, and possibly more thoroughly reported. In LiLACs, fewer participants (26%) reported pain, but again measurement differed. Almost 50% of our residents reported ongoing pain (even more were reported in text), justifying attention. This study shows that 71% of residents had three or more interRAI CAPs triggered; if these unmet needs were addressed, there could be gains to health, quality of life and longevity.

Residents commonly experience many concurrent diagnoses and manage a number of medications, mostly without assistance. The list of diagnoses for our residents differed markedly from all interRAI HC assessments in 2016 where dementia, depression, anxiety, stroke, congestive heart disease and diabetes were much more often recorded.33 This is largely because we additionally included diagnoses captured in free text: over 50% reported hypertension, almost 20% high cholesterol, with over 10% reporting atrial fibrillation and osteoporosis, though none of these conditions appear in interRAI reports because they are not asked about specifically. Consideration might be given to include some of these more specifically in the interRAI assessment, especially those contributing to clinical management of chronic symptoms, or, for example, potentially inappropriate prescribing.34

That 19% of residents described themselves as providing daily support for others suggests that investigating the interdependence between those who cohabit may be justified, to inform the need for formal care services should one partner no longer be able to assist.

Many other topics were covered. One is the proportion (43%) of residents whose faith in God or spiritual aspects of life influenced how they lived. In the 2013 national census, most people aged 65+ stated a religious affiliation, with just 20% saying they had no religion.35 Greater faith-orientation among residents may have been expected given that several larger villages in the region were originally established by churches that recognised the need for housing growing numbers of older people, and which continue to be occupied by people that share similar values, but this was not apparent. Elsewhere, religious participation is significantly associated with self-perceived health and well-being.36 37

Choosing to move into a village

The decision to move into a village is complex, with consideration given to health, family, financial, cultural and other factors.38 39 Residents stated that they anticipated supports and services would be available within the village if/when needed. A NZ-wide survey undertaken in 2006 for the Retirement Commissioner reported that the top three reasons for moving into a village were based around security and peace of mind—for security (55%), house/garden too much to manage (49%) and wanted fewer worries (39%).6 Care and support (37%) and pressure from families (36%) also played a large part. Our findings align well with findings from the Commissioner’s study and others.

Implications

In an Australian study, Gardner40 described two distinct groups of individuals relocating to RV: ‘planners’ who anticipate future health decline and move before there is a clear need, and ‘reactors’, who experience health problems and then move.40 Perhaps that distinction is relevant here, for compared with sampled residents, the volunteers were more likely to have investment income, less often came seeking immediate healthcare assistance or feeling under pressure by family, all indicating anticipation of future needs. Fewer volunteers reported poor quality of life. In contrast, sampled residents were more likely to experience an event(s) that prompted the move to the village or moved for financial reasons. They were less independent and were more likely to defer dental, eye and hearing examinations. These findings seem to align with Gardner’s observations, but intriguingly, differences were small between the groups in more objective measures of health (scales and CAPS), in diagnoses, and in overall satisfaction with the village.

If this dichotomy is real, the balance between the two groups of residents will no doubt vary between villages and also over time within any one village, and will impact on the social and recreational lives of residents. Importantly for research, it confirms that the findings a survey gives depends on who is asked. When surveys recruit without attempting a representative sample, important self-selection bias occurs and findings may thus mislead.41 42 Careful consideration of recruitment methods is needed when interpreting or comparing survey findings. Having said that, to recruit such a sample is challenging, as recognised by Wagner et al.43

In a survey of the RV association members (which does not include all village operators), more than half report that their village offers an on-site residential long-term care facility, while others offer long-term supportive care under contract in apartments in the main building.1 The question here though is support with housework, ADLs and personal cares, including occasional nursing services. In a 2006 survey of operators of NZ villages, 70% reported they offered some nursing, medical and/or other healthcare.6 While it is fair to observe that villages are not primarily set up as care facilities or health service providers, their residents do expect them to offer support services—in the current study 6 in 10 residents said that part of the reason for moving was to access healthcare assistance (either immediately or anticipating future needs). The distinction between expectation and reality was noted in the Retirement Commissioner’s report, where the concern most commonly mentioned was that the level of care and support was not as high as expected.6 A study in Queensland, Australia also concluded that older people moving to RV expect that in-home care-giving assistance will be available to them or their spouse when required, regardless of any stated management policy, and that villages needed to address this demand.44

In an observational cohort study comparing two models of primary care in four different continuing care retirement communities in the USA, integrating primary healthcare into a retirement community lead to fewer hospitalisations. Where an on-site primary care team provided round-the-clock care in that community, resident hospitalisations were 2.0–3.8 times fewer than when physicians who had independent practices outside of the retirement community provided limited on-site primary care and after-hours care.45 These findings imply that facilities which provide ongoing primary care cover have potential to reduce the use of off-site urgent care.

In our study, the CAPs commonly triggered showed important levels of unmet health need, most notably for prevention and management of cardiorespiratory disease/risk and pain, and for help to manage chronic diseases. Facilities such as nurse-led clinics (for cardiorespiratory management/support, pain management, risk monitoring, short-stay/overnight sick bay, or advice), physiotherapy, podiatry and exercise programmes might help meet those needs. On-site health services may be more efficient and accessible, and thus more effective, than services dispersed in standard NZ low-density housing. The conglomerate nature of housing in a village setting might thus offer efficiencies in health service provision compared with detached housing settings.

In general, residents were mobile, living independently and engaged in social activities even if receiving formal help or care. Computers were a part of life for many residents, with over half using a computer for email (70%) and for health knowledge (52%). In NZ, a significant positive relationship has been described between internet/email usage and general well-being, higher self-reported health status, increased participation and leadership in, and increased satisfaction with, leisure and recreation activities.46 This was confirmed in a systematic review of 18 quantitative cross-sectional studies, with all but one showing statistically significant correlations for at least one mental health outcome.47 Technologies including voice-activated assistants such as Alexa (Amazon) and Siri (Apple) already offer new learning and social connections for residents48 and have potential for health monitoring and care coordination.49 Further research and development might improve quality of life and social engagement.

Strengths and limitations

To our knowledge, this study is the largest cross-sectional survey describing social, health and functional needs of village residents in NZ. It has also established a cohort for a longitudinal cohort study of healthcare utilisation and an RCT of a health service intervention. Considerable efforts were made to obtain a representative sample, and although the response rate was low, it was not unusually so for people who are very old.43 Village managers, sometimes in consultation with residents, determined the method of recruitment thus a mix of sampled residents and volunteers was included. Randomly sampled participants generally yield more trustworthy results than volunteers because the self-selection component of participation is reduced.50 The sampled and volunteer residents were similar demographically and in most measures of health, so the combined results can be reasonably relied on. However, in some social and behavioural measures, there were significant differences between sampled residents and volunteers. The findings may therefore not always well represent all village residents in the region. Nevertheless, by recruiting residents from 33 villages, the findings for demographic characteristics and most health measures are likely to be more reliable than studies conducted in a small number of villages or entirely with volunteers. We collected no information about resident occupation/retirement status, numbers or ages of children or siblings.

The survey and needs assessments were conducted by experienced GNSs certified in the use of interRAI and in assessing the health-related needs of older people. If the GNS had any question about a resident’s cognitive capacity to consent, participation was precluded, to comply with NZ regulations. Results will therefore slightly overstate measures of capacity.

Use of interRAI has many benefits, mainly that questions are validated and largely standardised internationally.21 22 However, the interRAI CHA collects only two of the four items needed to derive the ADL short-form scale and therefore the IADL score, unless the Functional Supplement triggers. We therefore imputed the uncollected eating and toilet use items as ‘independent’; this overall may have led to slight underestimates of function and dependency. Finally, statistical comparisons of the two groups presented here are unadjusted for possible confounders, while the number of statistical tests may have raised spurious significant findings.

In summary, most village residents report good quality of life; they may access services and supports more easily than non-residents, yet many have high levels of comorbidity with health needs that are unmet. People who move to a village often do so in the expectation that health and support services will be available when needed. High levels of unmet need suggest health services are inadequate—common cardiorespiratory problems and ongoing pain in particular warrant attention in order to improve quality of life and to delay/avert hospital/ Emergency Department /long-term care presentation. Supports such as on-site nurse-led clinics to help manage chronic conditions and extra short-term care during illness have potential to improve health outcomes for residents. Village operators, tertiary, secondary and primary care providers could cooperate to develop and test appropriate interventions.

Acknowledgments

We acknowledge with thanks the village managers who accepted our researchers in, and the residents who kindly responded to our invitation to participate. Our thanks also to Gabrielle Peters for administrative support and to Amanpreet Bhandal, Lydia Siew, Lucy Groenhart, Britany Williams, Jose Manuel Gonzalez, Naomi Kang and Yao He for their contributions to the project.

References

View Abstract

Footnotes

  • Contributors MC (principal investigator), MB, DB, JBB, KB and KP were named investigators on the wider project and helped plan the study. For this report, JBB planned and drafted the paper, ZW conducted statistical analyses, MC, KB, JH, MB and KP provided clinical expertise. AT and CC interviewed and collected data, A-MH undertook project management, while DB provided support and valuable suggestions. MC provided guidance and oversight. Every author contributed by critically reviewing and revising the manuscript.

  • Funding This work was supported by two main funders, National Science Challenge Ageing Well (NZ) (UOOX1508, 12815/1, SUB1301) and the Waitematā District Health Board. Support came also from The Hope Foundation, the University of Auckland and Freemasons New Zealand that enabled preparatory work.

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Ethics approval The New Zealand Health and Disability Ethics Committee (16/CEN/34) gave ethics approval. Written, informed consent was obtained from all participants.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data availability statement Data may be obtained from a third party and are not publicly available from the researchers. When applying for ethics approval, we undertook to protect data confidentiality, and did not obtain participants’ approval to share it with others. We will however consider reasonable requests for collaboration, working within those constraints. Under certain conditions, interRAI data are available from TAS (Technical Advisory Services) in Wellington.

  • Abbreviations HBP high blood pressure GORD Gastro-oesophageal reflux disease IHD ischemic heart disease CVA cerebrovasclar attack TIA transient ischaemic attack MI myocardial infarction HF heart failure COPD chronic obstructive pulmonary disease CORD chronic obstructive respiratory disease* signifies that 'Any heart disease' is derived from combining all diagnoses in the figure marked with an *.

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.