Social consequences of long term impairments and disabilities: conceptual approach and assessment of handicap

Int J Rehabil Res. 1998 Jun;21(2):127-41. doi: 10.1097/00004356-199806000-00002.

Abstract

Objectives: To present a conceptual model of disablement adapted from the WHO model and to conduct a pilot study with a measurement tool (LIFE-H) of the concepts of life habits and handicap situations.

Design: Content validity and test-retest reliability study.

Setting: General community.

Participants: A panel of 12 experts of rehabilitation for the process of content validity and 49 individuals with spinal cord disorders (adults and children) for the reliability study.

Outcomes measures: a person's life habits (activities of daily living and social roles).

Results: The LIFE-H questionnaire was designed to assess the handicap situations observed in daily life of individuals with disability. The experts concluded that the LIFE-H items covered most of a person's life habits (ADL and social roles) and that it could be used to determine the appearance of handicap situations. The LIFE-H total score showed a good level of reliability for the children and the adult samples (ICC = 0.73 and 0.74, respectively). Taken individually, a majority of life habit categories have shown a moderate to high reliability level (ICC > or = 0.50) while a few life habit categories such as the interpersonal relationship or nutrition showed a lower reliability level.

Conclusion: The development of LIFE-H allows fulfillment of the need to determine the disruptions in life habits of persons with disabilities.

MeSH terms

  • Activities of Daily Living / classification
  • Activities of Daily Living / psychology*
  • Adaptation, Psychological
  • Adolescent
  • Adult
  • Child
  • Disability Evaluation*
  • Disabled Persons / psychology
  • Disabled Persons / rehabilitation*
  • Female
  • Humans
  • Long-Term Care / psychology
  • Male
  • Middle Aged
  • Neural Tube Defects / psychology
  • Neural Tube Defects / rehabilitation
  • Sick Role
  • Sickness Impact Profile
  • Social Adjustment*
  • Spinal Cord Diseases / psychology
  • Spinal Cord Diseases / rehabilitation*
  • Spinal Cord Injuries / psychology
  • Spinal Cord Injuries / rehabilitation