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Predictors of quality of life in carers for people with a progressive neurological illness: a longitudinal study

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Abstract

Purpose

The aim of the present research was to determine the predictors of quality of life (QOL) among carers for people living with a chronic degenerative neurological illness, with comparisons of the differences in significant predictors of QOL between illness groups.

Methods

Psychosocial and economic variables were examined among 192 carers for people living at home with motor neurone disease, Huntington’s disease, multiple sclerosis, and Parkinson’s, over a twelve-month period, to determine their contribution to the prediction of carer QOL.

Results

Mood was the only consistent predictor of carer QOL across groups; however, marital relationship satisfaction, social support satisfaction, income, and economic pressure significantly predicted carer QOL for at least one of the illness groups, in addition to mood.

Conclusions

The findings highlight the importance of recognising the varying roles that psychosocial and economic variables play on the prediction of carer QOL within each of these illness groups.

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Abbreviations

MND:

Motor neurone disease (also known as amyotrophic lateral sclerosis in some areas)

HD:

Huntington’s disease

MS:

Multiple sclerosis

QOL:

Quality of life

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Correspondence to Marita P. McCabe.

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O’Connor, E.J., McCabe, M.P. Predictors of quality of life in carers for people with a progressive neurological illness: a longitudinal study. Qual Life Res 20, 703–711 (2011). https://doi.org/10.1007/s11136-010-9804-4

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