Participants in the survey to identify uncertainties and source of suggestions classified as in-scope
| Registered for survey (n=475) | Submitted at least one suggestion (n=369) | Source of suggestions within scope (n=356) | ||||
|---|---|---|---|---|---|---|
| N | Per cent | N | Per cent | N | Per cent | |
| Stakeholder | ||||||
| Paediatrician | 44 | 9.3 | 40 | 10.8 | 49 | 13.8 |
| Paediatric neurologist | 7 | 1.5 | 7 | 1.9 | 3 | 0.8 |
| Surgeon | 12 | 2.5 | 10 | 2.7 | 12 | 3.4 |
| Nurse | 12 | 2.5 | 10 | 2.7 | 11 | 3.1 |
| Speech and language therapist | 29 | 6.1 | 19 | 5.1 | 12 | 3.4 |
| Physiotherapist | 61 | 12.8 | 55 | 14.9 | 72 | 20.2 |
| Occupational therapist | 39 | 8.2 | 35 | 9.5 | 49 | 13.8 |
| Orthotist/prosthetist | 4 | 0.8 | 4 | 1.1 | 6 | 1.7 |
| Psychiatrist | 6 | 1.3 | 5 | 1.4 | 8 | 2.2 |
| Psychologist | 1 | 0.2 | 0 | 0 | 0 | 0 |
| Dentist | 1 | 0.2 | 1 | 0.3 | 1 | 0.3 |
| Teacher | 2 | 0.4 | 2 | 0.5 | 1 | 0.3 |
| Academic/researcher | 2 | 0.4 | 2 | 0.5 | 1 | 0.3 |
| Specialist health visitor | 1 | 0.2 | 1 | 0.3 | 1 | 0.3 |
| Audiologist | 1 | 0.2 | 0 | 0 | 0 | 0 |
| Orthotist | 1 | 0.2 | 1 | 0.3 | 0 | 0 |
| Administrator or manager | 1 | 0.2 | 1 | 0.3 | 0 | 0 |
| GP | 2 | 0.4 | 6 | 1.6 | 1 | 0.3 |
| Health professional (not further specified) | 11 | 2.3 | 1 | 0.3 | 3 | 0.8 |
| Parent and health professional | 5 | 1.1 | 2 | 0.5 | 10 | 2.8 |
| Part of an organisation supporting disabled people | 29 | 6.1 | 2 | 0.5 | 8 | 2.2 |
| Parent, carer, relative of someone with neurodisability | 183 | 38.5 | 138 | 37.4 | 103 | 28.9 |
| Young person aged 24 or under with neurodisability | 11 | 2.3 | 6 | 1.6 | 3 | 0.8 |
| Person aged 25 or over with a neurodisability | 8 | 1.7 | 1 | 0.3 | 0 | 0 |
| Missing data | 2 | 0.4 | 2 | 0.5 | 2 | 0.6 |
| Total | 475 | 100 | 369 | 100 | 356 | 100 |
| Region | ||||||
| London | 45 | 9.5 | 30 | 8.1 | 15 | 4.2 |
| England (not London) | 150 | 31.6 | 122 | 33.1 | 92 | 25.8 |
| Northern Ireland | 5 | 1.1 | 2 | 0.5 | 2 | 0.6 |
| Scotland | 16 | 3.4 | 10 | 2.7 | 7 | 2.0 |
| Wales | 10 | 2.1 | 6 | 1.6 | 4 | 1.1 |
| Outside UK | 3 | 0.6 | 2 | 0.5 | 2 | 0.6 |
| Missing data | 246 | 51.8 | 197 | 53.4 | 234 | 65.7 |
| Total | 475 | 100 | 369 | 100 | 356 | 100 |
The ‘registered’ and ‘submitted at least one suggestion’ columns represent individuals; the ‘source of suggestions within scope’ column includes some items where an individual may have made more than one suggestion.
GP, general practitioner.