Table 1

Individual child characteristics

Parent ID numberMedical diagnosesAge at diagnosis of dysphagiaNutritional intakeRoute to recruitment
1CP epilepsy, GORDUnder 1 yearOral dietSchool
2Lissencephaly18 monthsOral dietSchool
3No diagnosis8 monthsOral dietSchool
4CP, hydrocephalus, epilepsy, VI, HIUnder 1 yearPEG plus oral tastesSchool
5CP, chronic lung disease, GORD1 yearOral diet (previously PEG)School
6Alagille syndromeUnder 1 yearHalf oral, half PEGSchool
7DS, CHDUnder 1 yearOral dietCharity
8DS, GORD5 yearsOral dietCharity
9Congenital cytomegalovirus, GDD1 yearOral dietFamily worker
10DS, CHD, GORD, HIUnder 1 yearOral dietCharity
11DSUnder 1 yearOral dietCharity
12DSUnder 1 yearOral diet (previously PEG)School
13DS, GORD, VI, HI2.5 yearsOral dietSchool
14DS, Hirschprung's disease, GORD3 yearsOral dietCharity
  • CHD, congenital heart disease; CP, cerebral palsy; DS, Down syndrome; GDD, global developmental delay; GORD, gastro-oesophageal reflux disease; HI, hearing impairment; PEG, percutaneous endoscopic gastrostomy; VI, visual impairment.