Outcome | Measure | Baseline | Preconsultation | Postconsultation | Quarterly follow-up |
---|---|---|---|---|---|
Demographics | Purpose designed | X | |||
Medical communication self-efficacy | PEPPI (adapted) | X | X* | X | X |
Quality of life | SF-36 V2 | X | X | X | |
Information and involvement | DCPS, CISQ (adapted) | X | X† | ||
Understanding of patient's disease and prognosis | Purpose designed | X | X | ||
Understanding of patient's end-of-life treatment preferences | Purpose designed | X | X | X | |
Understanding of patient's hopes for treatment | Purpose designed | X | X | X | |
Satisfaction | Purpose designed | X* | X* |
* denotes completion by intervention arm only.
† denotes modified version of DCPS and CISQ reflecting achievement of decision/information preferences.
CISQ, Cassileth information styles questionnaire; DCPS, Degner control preferences scale; PEPPI, Perceived efficacy in patient-physician interactions scale; SF-36 V2, SF36 health survey V.2.