Zarit Burden Interview30 | Reflects feelings about caring, measures carer burden | Baseline/monthly |
Hospital Anxiety and Depression Scale (HADS)31 | Assesses symptoms of anxiety and depression | Baseline/monthly and 2 months postdeath |
Satisfaction with Care at the End of Life (SWC-EOLD)27 | Assesses the carer's level of satisfaction with care in advanced dementia | Baseline/monthly and 2 months postdeath |
Comfort Assessment in Dying with Dementia Scale at the End of Life (CAD-EOLD)27 | Assesses the carer's perception of symptoms and comfort at the end of life | 2 months postdeath |
EQ-5D-5L32 | Used for calculation of quality-adjusted life years | Baseline/monthly |