Charlson comorbidity index21 | Calculates severity of chronic comorbidities | Baseline |
Functional Assessment Staging Scale (FAST)20 | Describes a continuum of 7 stages of functional impairment | Baseline |
Waterlow Scale22 | Risk for developing pressure sores | Baseline/monthly |
Bedford Alzheimer Nursing Scale (BANS)23 | Used to stage levels of severe memory impairment in dementia | Baseline/monthly |
The Neuropsychiatric Inventory (NPI)24 | Assesses behavioural and psychological symptoms in dementia | Baseline/monthly |
Cohen Mansfield Agitation Inventory (CMAI)25 | Measures a range of agitated and potentially challenging behaviours | Baseline/monthly |
Pain Assessment in Advanced Dementia (PAINAD)26 | Observational pain tool used to measures pain during care tasks and at rest | Baseline/monthly |
Symptom Management at the End of Life in Dementia Scale (SM-EOLD)27 | Assesses comfort and pain in the prior 30 days | Baseline/monthly |
Comfort Assessment in Dying with Dementia Scale at the End of Life CAD-EOLD)27 | Comfort at the end of life | Postdeath |
Quality of Life in Late Stage Dementia Scale (QUALID)28 | Quality of life in the prior week | Baseline/monthly |
The Resource Utilisation in Dementia Questionnaire (RUD-LITE)29 | Formal and informal health and social care resource use | Baseline/monthly/postdeath |