Participant characteristics
| Characteristics | Number (N=43) | Per cent | Age (mean/SD/range) |
|---|---|---|---|
| Age of caregivers | 47 (6.3) (38–65) | ||
| Sex of caregivers | |||
| Female | 30 | 62.5 | |
| Male | 18 | 37.5 | |
| Age of patients | 12 (8.5) (1.5–22) | ||
| Sex of patients | |||
| Female | 31 | 64.6 | |
| Male | 17 | 35.4 | |
| Patients major disabilities | |||
| Epilepsy | 39 | 81.2 | |
| Cognitive retardation | 46 | 95.8 | |
| SEGA | 48 | 100 | |
| Facial marks | 48 | 100 | |
| Bedridden | 0 | 0 | |
| Geographic origin of patients/caregivers | |||
| Northern Italy | 19 | 39.6 | |
| Central Italy | 13 | 27.1 | |
| Southern Italy | 16 | 33.3 | |
SEGA, subependymal giant-cell astrocytoma.