TableĀ 1

Responses

RankQ4 or higher32 or lowerMissingQuestion
n%n%n%n%
11631492.9103.082.461.8Psychological and psychosocial support from those specialising in the care of teenagers and young adults.
21431492.9113.382.451.5Contact with a nurse specialising in the care of teenagers and young adults.
31330389.6185.3133.841.2Treatment in an age-appropriate environment.
4128985.5329.5133.841.2Treatment by a site-specific surgical or medical team.
51228684.63410.1133.851.5Access to age-appropriate clinical trials.
62128584.3329.5185.330.9Contact with peers who have undergone or are undergoing similar treatments or who have been diagnosed with the same illness.
7628584.33811.2103.051.5Regular follow-up by a site-specific MDT.
8528584.34011.861.872.1Contact with a site-specific clinical nurse specialist or Macmillan nurse.
9328484.03911.5123.630.9Access to site-specific clinical trials.
10228283.43911.5133.841.2Diagnostics and staging by site-specialist clinical teams (radiology, pathology, etc)
111025675.74413.03410.141.2Treatment by a medical or surgical team who specialise in the treatment and care of teenagers and young adults.
121523669.85716.93911.561.8Regular follow-up by an age-specific MDT.
131923068.07421.9278.072.1Treatment at a high volume cancer centre.
141119557.78625.45215.451.5Diagnostics and staging by clinical teams specialising in the care of teenagers and young adults (radiology, pathology, etc).
15719457.4103.061.812837.9Psychological and psychosocial support from those specialising in the care of persons with cancer.
162619256.8103.030.913339.3Access to fertility specialists and advice on reproductive issues.
171718855.6123.651.513339.3Access to age-appropriate palliative care if needed.
182418655.0164.741.213239.1Support for family friends and partners of the patient.
191818454.4154.472.113239.1Access to age-appropriate end of treatment care and support and information on late effects of treatment.
202318354.1185.351.513239.1Educational and employment support during and after treatment.
212717953.0175.092.713339.3Ability to stay in contact with peers when in hospital, Facebook, email text messages, etc
22916849.7288.3133.812938.2Access to site-specific end of treatment care and support and information on late effects of treatment.
232516749.4308.9103.013138.8Treatment by the same team throughout.
24816047.3308.9175.013138.8Access to site-specific palliative care if needed.
252214141.74312.7226.513239.1Outpatient appointments held in an age-appropriate environment.
262012938.211634.38625.472.1Treatment at a hospital in close proximity to a patient's home address.
27411433.79026.612837.961.8Inpatient treatment on a site-specific ward (eg, breast).
  • MDT,multidisciplinary team.