Table 2

Main and subcategories from the analysis of patient contributions to OMERACT meetings and outcome research since 2002

Impact of a decade of patient involvement in OMERACT
Research agendaOutcome core setsPatient-reported outcomesCulture of OMERACTConsequences outside OMERACT

  • Generating challenging ideas

  • Identification of patient-relevant research topics:

    • Well-being

    • Fatigue

    • Sleep disturbance

    • Flares

  • Identification of patient relevant domains to include in core sets for clinical trials:

    • Fibromyalgia

    • Psoriatic Arthritis

    • Vasculitis

    • Gout

    • MRI

    • MCID

    • Remission

  • Acceptable, understandable and feasible outcome measures for

    • Monitoring adverse events

    • Work productivity

    • Flares

    • Psychosocial interventions

  •  ▸ Attitudes

  • Communication

  • Perceptions

  • Motivation

  • Relational empowerment

  • Personal benefits

  • Local initiatives

  • Local and national networks of partners

  • EULAR

  • COMET

  • ISDM

Reality check

  • OMERACT, Outcome Measures in Rheumatology.