TableĀ 1

Survey items and descriptions (each assessing a different domain of care)

ItemOn screen description
Better management of my physical symptomsMay relate to your pain, sleeplessness, other side-effects and symptoms
Better information and communication about my cancer and careMay include: clear and consistent information about your diagnosis, test results, treatment, taking medications, food you should be eating, exercise you can do safely, etc
Better emotional and/or spiritual supportMay include services or support to help you cope with: the impact of cancer on your life, doubts/worries, feelings of anxiety or sadness, changes to your body images, etc
Better services, information and support for my friends/familyMay include helping them to cope with the impact of your cancer, or providing opportunities for them to be involved in your care
Better staff approachability and respect for meDescribes staff who are easy to contact and up-to-date with your medical history, and who give you opportunities to ask questions and be involved in treatment decisions
Getting better access to the care I need when requiredDescribes not having to wait too long to get appointments, and having treatment and medical advice available when needed
Better services/support to cope with changes to my relationshipsMay include: knowing what changes to expect, and having some strategies to reduce the impact of cancer on your work, usual social activities, friendships or sexual relationships
Better services/advice to assist me with practical concernsMay include being able to access financial support, transport to treatment, home help services or other support needed to manage practical issues