Summary of assessments for carers
| Measure/author | Purpose | Source* | Time of assessment |
|---|---|---|---|
| Brief COPE39 | Measures coping strategies used | 4 | Baseline |
| Zarit burden interview40 | Reflects feelings about caring, measures carer burden | 4 | Baseline/monthly |
| Short form 12 health survey questionnaire (SF-12)41 | Measures health related quality of life over eight domains | 4 | Baseline/monthly/2 and 7 months postdeath |
| Hospital anxiety and depression scale (HADS)42 | Anxiety and depression | 4 | Baseline/monthly/2 and 7 months postdeath |
| Inventory of complicated grief (ICG) pre-loss43 | Assesses prevalence and severity of carers’ anticipatory grief | 4 | Baseline |
| Inventory of complicated grief (ICG) pre-loss (ICG-R) postloss43 | Identifies symptoms of complicated grief | 4 | 2 and 7 months post death |
| The resource utilization in dementia questionnaire (RUD-LITE)36 | Formal and informal health and social care resource use | 4 | Baseline/monthly/2 months postdeath |
| Client services receipt Inventory (CSRI)37 | As above but more financially based | 4 | Baseline/monthly/2 months postdeath |
| Satisfaction with care at the end of life (SWC/CAD-EOLD)33 | Assesses the carers’ level of satisfaction with care in advanced dementia | 4 | Baseline/monthly/2 months postdeath |
*4, Informal carer.