1. Understanding stroke |
1a. Visibility |
Disabilities that are not visible to other people (eg, fatigue, cognitive problems) Others (ie, colleagues, employer) thinking that the patient is making up the problems Feeling a fraud when having invisible problems, or problems that the patient sees as relatively ‘minor’ (and therefore apprehension in sharing problems with others at the workplace)
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1b. Normality |
Looking normal, not feeling or being normal (leading to a lack of understanding of a person's difficulties) Acting normal (others not being aware of difficulties, and in some cases being more tired by trying to ‘keep up’)
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1c. Sharing situation with others |
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1d. Knowledge of stroke |
A lack of understanding of stroke and stroke-related problems, or the timeframe of recovery (by patients and employers) GPs lack of understanding of the patients’ problems
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1e. Expectations and self-awareness |
Returning to work too soon, or taking on too much at work Lack of self-awareness, returning against the advice of others, or underestimating own disabilities, (ie, being unaware of making mistakes) Being back at work is more difficult than anticipated Problems getting worse after returning to work Overestimation of own disabilities, or potential difficulties related to work
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The anticipation of difficulties at work, and making appropriate arrangements related to this (ie, coping by the patient, as well as strategies in the workplace)
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1f. Acceptance |
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Accepting that one cannot function like before TIA/stroke, needs more rest, has to listen to his our her body Priorities changed, and re-labelling of one's identity (ie, work now seen as less important)
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2. Support |
2a. Strategies in the workplace |
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Range of strategies incorporated: Adjustments to the workplace, gradual return, reduced hours or duties, taking time, working at home, going home if tired Occupational Health appointment Changed the job for a job that was manageable Union involvement (to keep a job) Employer expecting a return to work Patient following the appropriate steps at work (Occupational Health, HR)
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2b. Support from others |
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Having a supportive and patient employer, having supporting colleagues Supportive family and friends Advice and support from others with stroke (ie, the Talkstroke Online forum, stroke club)
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2c. Others’ reactions |
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2d. Money | |
Having to work because of money issues Not entitled to benefits or retirement (eg, consultant not signing the form)
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2e. GP |
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3. Impairments and recovery |
3a. Stroke-related difficulties and recovery |
Fatigue Psychological problems Memory or cognitive problems Physical problems Language or speaking problems Problems specific to the job, or increased by returning to the job Making mistakes Insomnia Not functioning like before Subsequent stroke, or new disabilities
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Coping with difficulties, listening to own body (see table 2) Using antidepressants if needed Improvement over time Improvement of general recovery by medical interventions, physiotherapy, medication
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3b. Indirect problems |
Not being able to drive, commute to work Needing to sleep in afternoon (eg, therefore not being able to work full-time) Difficulties in applying for a job (the actual application process) Getting ready in the morning taking a long time Work itself increasing problems Medication side effects interfering with work
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Supportive colleagues helping out with commute, employer subsidising transportation to work Various coping strategies (see table 2) Having a pet improves general mood, and ability to deal with job
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3c. Feelings/mental health problems |
Stress (also augmenting stroke-related impairments) Negative views regarding work Fear a stroke may happen again at work Negative feelings: lack of confidence (to be able to perform at work), feeling vulnerable at work, loneliness
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Reducing stress levels (eg, by changing jobs) Enjoying being back at work, enjoying talking with friends/colleagues
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