Table 1

Study characteristics

Study IDCountryNo of participantsAge range (years)Methodological framework, for example, ethnography, phenomenology, qualitativeData collection, for example, in-depth interviews, focus groupsAnalysis, for example, content, framework, thematic, GTTopic
Peer-reviewed journal articles
Tong et al 12 Australia27 in total—14 receiving dialysis16 aged 12–17
11 aged 18–24
QualitativeIn-depth interviews and journal entriesThematic analysisExperiences and perspectives of adolescents and young adults with advanced chronic kidney disease
Cura20 The Philippines617–21Interpretive phenomenological analysisIn-depth interviews and participant diariesRicoeur’s theory of interpretationTransition from adolescence to adulthood in patients on dialysis who have ESRD
Kim and Choi21 South Korea912–18QualitativeIn-depth interviews, plus one focus groupContent analysisRenal transplant experiences of Korean adolescent transplant recipients
Murray et al 18 UK14Median age 23.5Mixed methodsIn-depth interviews following questionnaireContent analysisImpact of ESRD on education and employment outcomes in young adults
Lewis and Arber19 UK3520–30QualitativeIn-depth interviewsModified grounded theoryExploring impact of age at onset (<20 years of age, essentially a young age of onset) of ESRD on education and employment outcomes
Lewis and Arber22 UK4016–30QualitativeIn-depth interviewsModified grounded theory—social constructionist approachExploring the role of the body in end-stage kidney disease in young adults: gender, peer and intimate relationships
Harwood and Johnson17 Canada515–18QualitativeIn-depth, semistructured interviewsDescriptive phenomenological analysis (Giorgi’s method)Adolescents’ experiences of treatment after renal transplantation
  • ESRD, end-stage renal disease; GT, grounded theory.