Table 1

Questionnaire schedule

Standard age gap questionnaires	Baseline	6 weeks	6 months	12 months	18/24 months	Long term
IADL	*
ADL	*
MMSE	*
ECOG performance status	*
Subjective global assessment	*
Comorbidity	*
EQ5D	*	*	*	*	*
QoL (EORTC-QLQ C30, QLQ-BR23 and QLQ-ELD14)	*	*	*	*	*
Decision quality	*	*
RECIST if PET	*	*	*	*	*
Registry data access						*
Tissue access	*					*
Tumour details	*
Treatment details	*	*	*	*	*
Adverse events	*	*	*	*	*