Demographic data collected
| Gender | Male or female |
| Date of birth | Date/Month/Year |
| Height | Centimetres. Stevenson’s89 formula was used to estimate height if lower limb contractures were present. |
| Weight | Kilograms |
| Patient location | Metropolitan: lives within 100 km of hospital where managing ITB team is located Regional: lives >100 km but <1000 km of hospital where managing ITB team is located Remote: lives >1000 km of hospital where managing ITB team is located |
| Nutrition | Categorised as oral, enteral or oral and enteral feeding |
ITB, intrathecal baclofen.