Assessment | Initial visit | Follow-up* | |
Demographics and cancer/cancer treatment characteristics | X | ||
Clinical examination | X | X | |
Anthropometry •Weight •Weight history | X X | X | |
Blood tests: As per standard of care For example, colorectal cancer survivors: CEA every 3 months Other blood tests only as clinically indicated | X | X | |
Imaging/procedures: As per ASCO guidelines Breast cancer: mammogram and/or breast ultrasound annually. Colorectal cancer: CT chest/abdomen/pelvis annually for 5 years. Colonoscopy: 1 year after diagnosis then frequency dependent on the result Results of other procedures as ordered by oncology team as part of standard of care. | X | X | |
PRO | |||
Distress (Distress Thermometer)22 | X | X | |
Symptoms (Patient’s Disease and Treatment Assessment Form)21 | X | X | |
Sedentary time (Sitting Questionnaire)25 | X | X* | |
Physical activity (Active Australia Questionnaire)24 | X | X* | |
Three-day food diary and food questionnaire | X | X* | |
QOL questionnaire (FACT-G)23 | X | X* | |
ECOG Performance Status26 | X | X | |
Evaluation | SSC feedback questionnaire | X | |
SSC satisfaction survey | X | X | |
Treatment and survivorship plan evaluation | X | X* |
*Follow-up will be individualised depending on tumour type and stage of disease but will generally be every 3–6 months. With the exception of the Distress Thermometer, Patient’s Disease and Treatment Assessment Form and the self-rated performance status, questionnaires will not be completed more frequently than every 6 months.
ASCO, American Society of Clinical Oncology; CEA, carcinoembryonic antigen; ECOG, Eastern Co-operative Oncology Group; FACT-G, Functional Assessment of Cancer Therapy—General; PRO, patient-reported outcome; SSC, Sydney Survivorship Centre; QOL, quality of life.