Table 3

Survey content for the 2015 Diabetes MILES–Australia survey

Concept/topicMeasure or variable2015 new cohortLongitudinal cohort2011 survey
Demographics
 Eligibility screenDiabetes type, age, live in Australia✓✓✓
 Demographic and socioeconomic detailsGender, state, postcode, country of birth, language, marital status, living situation, income, employment, education
 Diabetes detailsDiabetes duration, diabetes treatment
 OtherDiabetes organisation membership, how they heard about survey
My general well-being
 General emotional well-beingWorld Health Organisation Well-being Index (WHO-5)59✓✓✓
General life satisfaction (single item)60
 Depressive symptomsPatient Health Questionnaire (PHQ-8)61
 Anxiety symptomsGeneralised Anxiety Disorder scale (GAD-7)62
My feelings about diabetes
 Diabetes-specific distressProblem Areas In Diabetes Scale (PAID)63✓✓*✓*
Diabetes Distress Scale (DDS)64✓†✓†
Type 1 Diabetes Distress Scale (T1-DDS)65✓†‡
 Diabetes-related and generic stigmaType 1 and Type 2 Diabetes Stigma Assessment Scales (DSAS-166; DSAS-2 67)✓✓*
Stigma Scale for Chronic Illnesses-8 item version (SSCI-8)68✓✓*
6 study-specific items about portrayal of diabetes in the media✓✓
 Quality of lifeDAWN Impact of Diabetes Profile (DIDP)5✓✓
 Illness centralityCentrality Scale69✓✓
My general health
 Health backgroundPhysical and mental health comorbidities and complications, height and weight, smoking status, health insurance and pension✓✓✓
 Weight stigmaWeight Self-Stigma Questionnaire (WSSQ)70✓✓
 MemoryProspective and Retrospective Memory Questionnaire (PRMQ)71✓✓
Support from health professionals, family and friends
 HealthcareAccess to providers in past 12 months, main provider, group structured education✓✓✓
 Social supportDiabetes Support Scale (DSS)72✓✓
Social Support subscale of Diabetes Care Profile (DCP)73✓✓
 Peer supportStudy-specific items✓✓
My diabetes
 Self-careDiet and physical activity subscales of the Summary of Diabetes Self-Care Activities (SDSCA)55✓✓
Study-specific items: dietary behaviours✓✓
Study-specific items: physical activity behaviours✓✓
Study-specific items: blood glucose monitoring✓✓
Modified importance and burden items (for diet, physical activity, blood glucose monitoring) from the Summary of Diabetes Self-Care Inventory-Revised (unpublished)✓✓
 Diabetes treatmentStudy-specific items assessing frequency/time of day for injections/bolusing, frequency of forgetting and skipping injections/bolus/medication dose, reasons for forgetting/skipping✓✓
 HbA1cStudy-specific items✓✓✓
 App use for self-management supportStudy-specific items✓✓
 Diabetes-specific self-efficacyConfidence In Diabetes Self-Care (CIDS) (insulin-using 57 and non-insulin-using versions 58)✓✓
 Psychological insulin resistanceInsulin Treatment Appraisal Scale (ITAS)74✓§✓§✓§
‘Willingness to begin insulin’ single item75✓§✓§
My blood glucose levels
 HyperglycaemiaTwo items adapted from the Hyperglycaemia Avoidance Scale (HAS)76✓‡✓‡
 HypoglycaemiaStudy-specific items (some based on the Hypoglycaemia Awareness Questionnaire 77) to assess frequency, hospitalisation, insulin adjustment in response to hypoglycaemia, impaired awareness of hypoglycaemia✓✓✓
Edinburgh Hypoglycaemia Survey (EHS)78✓✓
Gold Score79✓✓✓
My thoughts and beliefs
 Self-esteemRosenberg Self-Esteem Scale (RSE)80✓✓
 Self-compassionSelf-Compassion Scale Short Form (SCS-SF)81✓✓
 OtherFree-text box inviting participants to make any other comments✓✓✓

  • *Participants who completed survey B version in 2011 only.

  • †Participants who completed survey A version in 2011 only.

  • ‡Participants with type 1 diabetes only.

  • §Participants with type 2 diabetes only.

  • HbA1c, glycated haemoglobin.