Table 1

Positive associations with discharge instructions

ThemesRepresentative quote
Security
  • …the [phone] numbers, how can I put it? It's almost like knowing you've got a fire extinguisher.(Participant 10)

  • It just removes a lot of mental conflict.(Participant 7)

  • I can tell you that if I was incapacitated where I couldn't tell them [family] anything, they could see for themselves.(Participant 10)

Reminder
  • I was about to sit down in that tub and, of course, her way of making a point was to bring this [discharge instructions] to me. She says, “What do you think you're doing?”… And she says, “You can't take a bath. You have to take a shower.”(Participant 10)

  • It's like an appointment map(Participant 4)

  • … it's got everything in here that the doctors have probably already told me even though I'm kind of drugged up or whatever. I can still go back and recall it.(Participant 1)

  • It's all the instructions that, you know, they give you verbally before you leave…it's nice to have it written down. Heh, like by now I've been on a weight restriction for so long I forgot I even had it.(Participant 11)

Living Document
  • Anything that comes up that's not already printed up…I can write it on there and fill in what's there.(Participant 7)

  • …at least there is some room. In fact I noticed this on several pages. There is room and you can see where if—if it came to where I needed to make notes; I had room to make notes. And—and I like that idea.(Participant 10)

  • I was just tickled by the fact that uh I had another appointment come up. And I had room to put it there. So, and as you can see, I utilized that. And I'm—and I'm grateful for that.(Participant 10)

Empowerment
  • That's right and if you don't follow this plan you're going to wind up back here.(Participant 4)

  • …someone else was doing it for you and you felt that [they weren't] doing the right thing for you…you had the instruction to follow anyway. So you can just [say], “I don't need you anymore; I can do this for myself you know.”(Participant 4)