Table 1

Sample strategy and characteristics

PhaseParticipantsSampling strategySample size
1Senior managers/LDLNSenior managers from the trust identified by the local collaborator as having relevant knowledge of hospital services and provision.
All staff with a defined role for CYP with ID.
36–54
Hospital staffAll clinical and non-clinical staff with contact with CYP and their families will be invited.1800
2CYP and parentsA purposive sampling strategy using a sampling matrix to ensure diversity according to level of ID, age, ethnicity.56–64 CYP
56–128 Parents
Hospital staffAll ward managers on each study ward will be invited.
A purposive sample of hospital staff identified by parents or CYP as making a difference to their care.
12 ward managers
112–128 hospital staff
Community staffAll community professionals named by parents as being involved in the care of their child.280–320
3CYP and parentsAll CYP and parents discharged from participating wards.60 CYP
360 Parents
  • CYP, children and young people; ID, intellectual disability; LDLN, learning disability liaison nurse.