Characteristics of respondents
| Respondent characteristics (total=767) | No. (%) research nurse respondents* (n=560) | No. (%) data manager respondents* (n=41) | No. (%) trial manager respondents* (n=129) | No. (%) chief and principal investigator respondents* (n=37) |
|---|---|---|---|---|
| Age, years | ||||
| ≤25 | 4 (0.7) | 3 (7.9) | 4 (3.1) | 0 (0) |
| 26–35 | 95 (17) | 14 (36.8) | 51 (39.5) | 5 (13.5) |
| 36–45 | 193 (34.5) | 10 (26.3) | 43 (33.3) | 11 (29.7) |
| 46–55 | 217 (38.8) | 8 (21.1) | 23 (17.8) | 14 (37.8) |
| ≥56 | 51 (9.1) | 3 (7.9) | 8 (6.2) | 7 (18.9) |
| Years in research role | ||||
| <1 | 51 (9.2) | 4 (10.5) | 12 (9.3) | 0 (0) |
| 1–3 | 208 (37.3) | 13 (34.2) | 42 (32.6) | 11 (29.7) |
| 4–6 | 147 (26.4) | 7 (18.4) | 31 (24) | 4 (10.8) |
| 7–9 | 50 (9) | 4 (10.5) | 12 (9.3) | 5 (13.5) |
| ≥10 | 101 (18.1) | 10 (26.3) | 32 (24.8) | 17 (45.9) |
| Setting of most recent clinical trial collecting PROs† | ||||
| Primary care | 112 (20.7) | 15 (39.5) | 47 (37.9) | 16 (44.4) |
| Secondary care | 428 (79.3) | 23 (60.5) | 77 (62.1) | 20 (56.6) |
| Clinical areas covered by most recent clinical trial collecting PROs† | ||||
| Cardiovascular | 69 (16.5) | 3 (9.4) | 10 (10) | 0 (0) |
| Elderly care | 17 (4.1) | 2 (6.3) | 10 (10) | 2 (7.4) |
| General medicine | 39 (9.3) | 2 (6.3) | 7 (7) | 0 (0) |
| General practice | 19 (4.5) | 3 (9.4) | 23 (23) | 9 (33.3) |
| Neurology | 51 (12.2) | 1 (3.1) | 9 (9) | 4 (14.8) |
| Obstetrics and gynaecology | 22 (5.3) | 3 (9.4) | 7 (7) | 2 (7.4) |
| Oncology | 119 (28.5) | 15 (46.9) | 28 (28) | 1 (3.7) |
| Opthalmology | 8 (1.9) | 1 (3.1) | 4 (4) | 7 (25.9) |
| Orthopaedics | 35 (8.4) | 1 (3.1) | 7 (7) | 1 (3.7) |
| Paediatrics | 35 (8.4) | 2 (6.3) | 9 (9) | 6 (22.2) |
| Respiratory | 41 (9.8) | 5 (15.6) | 8 (8) | 3 (11.1) |
| Rheumatology | 47 (11.2) | 1 (3.1) | 6 (6) | 5 (18.5) |
| PROs used in trial† | ||||
| EuroQol EQ-5D | 401 (76.1) | 25 (67.6) | 99 (82.5) | 24 (80) |
| Health Assessment Questionnaire (HAQ) | 154 (29.2) | 1 (2.7) | 4 (3.3) | 2 (6.7) |
| Nottingham Health Profile (NHP) | 0 (0) | 0 (0) | 0 (0) | 0 (0) |
| SF-12 Health Survey or SF-12v2 Health Survey | 36 (6.8) | 6 (16.2) | 22 (18.3) | 7 (23.3) |
| SF-36 Health Survey or SF-36v2 Health Survey | 104 (19.7) | 5 (13.5) | 17 (14.2) | 6 (20) |
| Hospital Anxiety and Depression scale (HAD) | 115 (21.8) | 4 (10.8) | 21 (17.5) | 11 (36.7) |
| Arthritis Impact Measurement Scales (AIMS2) | 3 (0.6) | 0 (0) | 0 (0) | 2 (6.7) |
| EORTC QLQ—C30 (Core Questionnaire) | 106 (20.1) | 9 (24.3) | 18 (15) | 0 (0) |
| Minnesota Living with Heart Failure Questionnaire (MLHF) | 9 (1.7) | 0 (0) | 1 (0.8) | 1 (3.3) |
| Oxford Hip Score (OHS) | 9 (1.7) | 0 (0) | 0 (0) | 1 (3.3) |
| Oxford Knee Score (OKS) | 14 (2.7) | 1 (2.7) | 0 (0) | 0 (0) |
| Roland-Morris Disability Questionnaire (RMDQ) | 2 (0.4) | 0 (0) | 2 (1.7) | 4 (13.3) |
*Columns may not add up to n due to missing values.
†Respondents could select multiple categories.