TableĀ 1

Summary of characteristics of inclusive health research in the questionnaire

In general
Recruitment
  • Description of recruitment process

  • Representative sample of people with ID

Accessibility
  • Accessible information

  • Feedback on accessible information

  • Accessible research outcomes

  • Time provided to discuss information

  • Accessible resources

  • Description of provision of accessible information

  • Description of development of accessible information

  • Task definitions

Facilitation
  • Acknowledgement of extra resources by funding bodies

  • Sufficient amount of time provided

  • Participation as early as possible

  • Structured and described decision-making process

  • Inclusive distribution of research outcomes

  • Involvement in research agenda setting

  • Attention on helper-relations

  • Inclusive implementation of research outcomes

Reflection
  • Ethical reflection

  • Reflection on justification

Evaluation
  • Insight into added value

  • Evaluation on personal learnings

  • Evaluation on mutual learnings

Specific to collaboration approachSpecific to control approach
  • Open, respectful and confidential atmosphere

  • Relationship with research group

  • Training during participation

  • Partnership and shared decision-making power

  • Power to influence research

  • Training before participation

  • Salary

  • Remuneration

  • Number of people with ID higher than professionals

  • Open, respectful and confidential atmosphere

  • Engagement with research group

  • Training during participation

  • Power to influence research

  • Training before participation

  • Salary

  • Complete decision-making power

  • Remuneration

  • Number of people with ID higher than professionals

  • ID, intellectual disabilities.