Table 1

Sensitivity of the ascertainment of incident cancer cases on the registry from hospital data by demographic and tumour characteristics, 2005–2009

VariableRegistry casesAscertained in the hospital data*Sensitivity (%)95% CL
Year of diagnosis
 200597385087.4(85.1 to 89.4)
 200692682789.3(87.1 to 91.2)
 2007103490787.7(85.6 to 89.7)
 2008100187887.7(85.5 to 89.7)
 2009100586085.6(83.2 to 87.7)
Age at diagnosis (years)
 <5024622189.8(85.4 to 93.3)
 50 to 5959151987.8(84.9 to 90.3)
 60 to 69108797389.5(87.5 to 91.3)
 70 to 791487133890.0(88.3 to 91.5)
 80+1528127183.2(81.2 to 85.0)
Remoteness of residence
 Major city3447307889.3(88.2 to 90.3)
 Inner regional109190983.3(81.0 to 85.5)
 Outer regional36630583.3(79.1 to 87.0)
 Remote and very remote353085.7(69.7 to 95.2)
Primary site
 Pancreas (C25)4211373388.6(87.7 to 89.6)
 Extrahepatic bile duct and ampulla (C24)54242778.8(75.1 to 82.2)
 Duodenum (C17.0)18616287.1(81.4 to 91.6)
Histology type
 Adenocarcinoma2629238890.8(89.7 to 91.9)
 Cholangiocarcinoma19313167.9(60.8 to 74.4)
 Neuroendocrine14411881.9(74.7 to 87.9)
 Other454088.9(75.9 to 96.3)
 Unspecified1928164585.3(83.7 to 86.9)
Extent of disease
 Localised83980595.9(94.4 to 97.2)
 Regional90784693.3(91.4 to 94.8)
 Distant2082186389.5(88.1 to 90.8)
 Unknown111180872.7(70.0 to 75.3)
Best basis of diagnosis†
 Histopathology2761251090.9(89.8 to 92.0)
 Cytology48140784.6(81.1 to 87.7)
 Clinical1507138792.0(90.6 to 93.4)
 Death certificate only187189.6(5.8 to 14.8)
Resection status
 No resection4209360785.7(84.6 to 86.7)
 Resection73071597.9(96.6 to 98.8)
Overall4939432287.5(86.6 to 88.4)
  • *Registry cases with a diagnosis of pancreatic or periampullary cancer recorded in an admission. We did not measure the concordance of variables between the two data sources.

  • †Cases (n=3) notified by postmortem only are not shown. Cases notified to the New South Wales Central Cancer Registry (NSW CCR) by death certificate only were unavailable for 2009.22 Death certificate-only notified cases were 4.8% (187/3934) of cases for the 2005–2008 period.