Table 3

Quotation related to personal considerations of rheumatoid arthritis risk and communication about risk within families

CodeQuotation
Q11That's exactly what he doesn't talk to me about, he's the kind of person who leaves others out of it, deals with it by himself. (Participant 30)
Q12I am worried about that…I was quite surprised when mum said that she'd had this letter explaining about the research that you're doing. (Participant 23)
Q13He doesn't tend to talk about it. He didn't want to ask me to do this phone call, but forced himself to one day…This is probably the first time he's actually asked me to do anything and he was clearly uncomfortable. (Participant 24)
Q14I never had that information of what happens, how you're made at higher risk, I've never had that in like black and white…which makes me think she doesn't know or maybe she's just trying to protect me like a mother does. Because I think she was quite worried about me taking part…she's quite worried about what I'd find out. (Participant 5)
Q15My mum, sort of, mentioned this to him [brother], and he was just, like, ignored the fact that she'd said anything to me. And then she came to me and said, ‘I thought I'd ask your brother first but he won't,’ and I said, ‘I don't mind,’ but he's probably different to me, just blissful ignorance, whereas I'm probably a little bit different. (Participant 2)
Q16Up until now I have never thought about it, what that would be like, whether it might happen. (Participant 28)
Q17 I guess before we spoke I couldn't understand what it was exactly that was making her finger sore or swollen or anything like that. I would just be like, drink more milk. (Participant 20)
Q18You only worry too much and rack your brain, because then I have to consider that my children could get it too and then you would worry too much. It's more comfortable to avoid it. (Participant 32)